Author: barefootlilylady
I love sharing about my barefoot gardening adventures, hence my blogger name. As I write, some of my other passions might spill out -- like fun with grandkids, baking and sewing endeavors, what I'm studying in Scripture, and the like. My readers will notice that one of the primary things I write about is Alzheimer's. May what I write be an encouragement to anyone who is a caregiver for someone they love with memory loss.
Encounters with Grace
Encounters with Grace
Saturday, November 25, 2018
In his sermon last Sunday, our pastor reminded his congregation that it is easy to miss the beauty of God’s grace in our every day lives. We are so accustomed to receiving his daily gifts and benefits we often grow blind to His goodness and loving kindness toward us. Pastor Jeremy challenged us to watch for ways God demonstrates His abundant grace toward us. To do this, he gave us an assignment asking us to take out a sheet of paper and list 20 things God has given us that we do not deserve.
I’ve been watching and taking notice this week – here’s my list with a little bit of explanation on each. 
- My copy of God’s Word – with real pages I can turn and plenty of room in the margins to jot special notes. By God’s grace, my granddaughter Violet loves God’s Word and has the same Bible.
Our matching Bibles - The Grace of Family. Growing up in a family who lived several states away from our kinfolk, I recognize full well the grace of having my family close.
- Veiled grace. Our friends had their baby on Thanksgiving Day. My first thought was, “Oh no!” Their wee girl wasn’t due to make her debut until February. While ‘Baby K’ was more than a mite too early, she arrived on the day that was just right on God’s timetable. By His grace, she weighed 2lb 14oz – a good weight for a babe who arrived much too early. Also by His grace, she was delivered by emergency cesarean in a hospital equipped to handle the very special needs of Baby K and her mommy. A careful look at the circumstances surrounding Baby K’s arrival reveal God’s veiled grace in everything.
- Grace for Rough Days. Momma struggles with the little things in life. Just getting out of bed is rough. Walking hurts. Underwear are disposable, and for good reason. Sleep comes…eventually, and not always when everyone else wants to sleep. Grace for rough days comes in many forms – usually shaped like people who care.
- Hugs. If grace could be measured in a currency of hugs from grandkids, I’m one very wealthy woman.
- Testimonies of God’s Grace. We attended a Thanksgiving Eve Service at Wildwood Church where our son serves as an elder and missions pastor. It was a blessing to sing favorite hymns together with brothers and sisters in Christ we were meeting for the first time. We listened, sometimes with a laugh, other times with tears in our eyes as members of this congregation shared their testimonies of God’s grace in their lives.
- Grace in having a furnace to keep our house warm. Our thermostat is set at 72 – mostly because my mom is always cold. My body must have grown used to her temperature preference; at times, I felt a bit too cold at my son Matt’s house where it was 63 degrees. Then my mind recalls my husband’s recent trip to India where he discovered winter temps can fall into the 30’s at night. Many folks there don’t have heat in their homes. Or insulated walls, windows and doors. Or a fireplace. I’m thankful for a warm house, socks for my usually bare feet, and money to pay our heating bill.
- Grace in owning a washing machine, a convenience totally foreign to many in the world. A blessing for the umpteen loads of wash in the week of a caregiver.
- Grace in laughter. A cheerful heart really IS good medicine (Proverbs 17:22). Yesterday, one grandson with especially infectious laughter was riding in the back seat of our car and his giggles blessed my heart.
- Grace in a Spirit Who prays for me. Sometimes I am so fatigued and emotional, or tired and discouraged. I don’t know how to put my needs into words in prayer. My gracious God knows what I need, and the Spirit of God dubs in the words my heart utters but my lips cannot speak.
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Me and my guy (Photo credit: Don Yantis) “This is Us” kind of Grace. When it feels as though my caregiving responsibilities are sucking the “us” out of our marriage, I am reminded that God gifted me with a husband whose generosity goes beyond material things. He lovingly supports me in this decision to care for my mom in our home by unbegrudgingly giving of his own time while I give of mine.
- Grace notes. Musical ‘grace notes’ are tiny ornaments decorating a musical piece with beauty. I’m blessed with three granddaughters who love to leave little surprise notes for me to discover as I go about my day. I call them my grace notes. I don’t deserve granddaughters who love me like that, but God blessed me with them and I am SO grateful.
- Grace in the ability to hear and enjoy music. Momma lives in a rather silent world. Oh, how I wish she could hear the beautiful music I heard this week. Two “hymn sings” in one week; lovely piano pieces played by special granddaughters; my daughter-in-law singing and humming to Christmas music while prepping food in the kitchen, to name a few. I found special joy in watching my daughter teach her daughter to line dance while my son-in-law sang a little boot-scootin’ country tune. I cannot imagine a world devoid of the grace of music.
- Grace in Technology. I confess, I really enjoy Facebook. Frustrating as I sometimes find my laptop and iPhone, the ability to see the faces of loved ones near and far gathered around their own Thanksgiving table is priceless.
- Diet Coke and Coffee. Enough said.
- God’s grace of comfort as I sleep. One of the missionaries we support shared a picture yesterday that made me realize how blessed I am to have a comfortable bed, an abundance of blankets, and pillows that are just right. His photo was a reminder to pray for refugees in Iraq whose city had been hard hit by recent heavy rains, drenching their dwellings and meager belongings. Lord, as I fluff and arrange my pillows at night, remind me to pray for those who have no place to lay their sleepy head tonight.
- God’s gracious gift of helpers. Momma’s Friday and Sunday caregivers, Kathryn and Kathi, are an amazing grace gift, allowing a bit of time away from caregiving each week. And I must not forget my friend Waldely, who helps keep my head above water (and dust) by helping me with housework.
- Amanda and Lisa. As my caregiving responsibilities grew, I contemplated stepping down from my church ministries, including teaching Sunday School. Then, just as Aaron and Hur came alongside Moses to hold up his weary arms, Amanda and Lisa stepped in to help me with teaching responsibilities. They are a gift of God’s grace in my life.
- Grace in a basket of warm, freshly dried laundry. Momma so relishes feeling useful…and handling warm laundry in need of folding brings her extra-special joy.
- Grace in the next generation. Tomorrow about 24 young faces will look up at me as we sing praises and learn more from God’s Word in Sunday School at Memorial Baptist Church – evidence of God’s grace continuing to the next generation.
Now, it’s time to flip my list over and start again. Would you join me in the comments below by sharing evidences of God’s grace in your life? One or two will do, but I’d encourage you to begin your own list too.
Thanksgiving and Old Photos
Our son Matt and his family are hosting our family’s Thanksgiving celebration this year. This is the second year they’ve hosted us in their splendid home set on the bluffs of the Mississippi River in Hampton, Illinois. I enjoy helping out in their spacious and well-appointed kitchen.
I am thankful my sister is hanging out with mom so Wayne and I can get away from the responsibilities of caregiving for a few days.
What a blessing. God bless her.
On Sunday my daughter mentioned she is bringing the pies…lots of pies. I hear there will be pumpkin, French Silk, and chocolate pecan. On Monday she stopped by my house to borrow a few extra pie plates and Tupperware pie carriers.
Lord, help me.
Knowing Beth will be the bearer of pies made me wonder what I would be bringing. Other than an email asking for my stuffing recipe, I hadn’t heard whether I should bring anything. I sent my son a text which read
Did I miss a memo on what to bring for Thanksgiving?
His reply –
Just yourselves! 🙂
Wow! Another life change happened when I wasn’t looking. Not cooking anything for Thanksgiving?
When did that happen?
Wasn’t it just yesterday that THIS happened?
I found these photos while working on a long overdue project of creating some family photo albums. Matt must have been 4 years old and Beth almost 2, so it must be 1981.
I love everything about these memory evoking photos. The teeny tiny kitchen in our first house on 49th Street. The hand-me-down kitchen table and chairs from my in-laws. The 1950’s wallpaper. The orange tiles on the kitchen floor. Our tiny refrigerator barely had room for the turkey to thaw.
At the corner of one photo I spied the shelving Wayne custom built for our itty-bitty kitchen. The shelf now has a couple of coats of blue paint on it and sits in a place of honor on our three-season porch holding memorabilia of years past. As I examine the photo below more carefully, I see on one shelf a turtle cookie jar (I used to collect turtles), which I have since passed along to my son.
Thirty-seven years later, I still use that very same turkey roasting pan…and the brown-striped kitchen towel!
I love Matt’s facial expression as he examined his messy little hand after helping stuff the turkey. I think we need to recreate this photo.
And my little blonde sweetheart Beth! Look at the cherubic face of my little helper. Be still my heart!
These old photos have taught me the importance of capturing images of special moments we have together as a family. Tomorrow we will have Matt and Beth and their families gathered together in one place.
And I will have a camera.
Six on Saturday: Snowy Morning
Like last week, we awoke again this morning to a thin layer of fresh snow covering the yard – and a promise of more to come. In between snowfalls, we had two days where the temps hovered near 40 degrees. I managed to get those daffodil and tulip bulbs in the ground, but had to tuck them in close to the house where the ground was warmer.
The sunshine lured me outdoors this afternoon while Momma took a little catnap. Drinking in the fresh, clean air, I took a little stroll through the yard and snapped a few photos of things that caught my eye.
Do you think this garden bench would look pretty painted a grape-y shade of purple? I’m toying with the idea. Or should I leave it to weather as is? What say ye?
Hubby found this discarded ladder a couple of summers ago and painted it a lovely shade of green to serve as a trellis and whimsical piece of yard art with my painted bird houses perched on top. The garden ladder supports a clematis vine I snagged from my mother’s garden before I sold her Milwaukee home. I’m so glad that I was able to dig a few of her pretty flowers to make the move with her. I’m not entirely sure what pruning type this clematis is, but decided to take a chance and prune it back today to make the area look tidy. My mom can see it from her usual spot at the kitchen table and often comments about how the gardener really should clean that up.
Hubby added the rope to assist little climbers after he cut off one of the lower branches they used to hoist themselves up into the crab apple tree. One of my favorite memories is of my granddaughter Violet sitting up there perched as high as she dared singing praises to Jesus and thanking God for this tree to climb.
Friday night is date night at our house. We pay a caregiver to come and hang out with my sweet Momma while we go out to dinner, see a movie, or do some shopping. Last night we found ourselves at Menard’s where we replenished our birdseed for our feathered friends. I also replaced my worn out garden gloves with some brand new hot-pink ones…hopefully won’t lose them next year.
It has been a crazy week here. Short on sleep most nights and long on trying to keep mom awake and occupied during the daytime when she’d really rather sleep. Sometimes I’m just so tired that I give in and let her nap. Today is one of the days when I did my best to keep her awake, thus putting off my contribution to Six on Saturday. It’s still Saturday and here it is.
If you would like to join in with this fun weekly meme started over at The Propagator, take a look here.
Five Minute Friday: ONE
It’s hard to believe in less than a week hubby and I will be gathered with our kids and their families celebrating Thanksgiving. I’m personally looking forward to time away from caregiving (thankful for my sister who will care for mom while we take a little break), time with my grandkids, a little uninterrupted sleep, good food cooked by my kids and a few of their kids with a little help from me (When did THAT happen? Used to be the other way around!), and everything else that goes with spending time with family reflecting on God’s goodness to all of us.
I’m linking up for the first time with Kate Motaung and the Five Minute Friday community. Five minutes of free write on a weekly word prompt. Today’s word is one. Here’s the first thing that came to my mind.
Just ONE thing
I have so many things on my always growing “to-do list”. In my world of being a full-time caregiver for a mother with Alzheimer’s, there are days when I may as well throw my to-do list in the trash, as Momma’s needs trump my would-like-to-get-done checklist.
One thing has helped. Simply focusing on one thing at a time.
“One bucket of weeds” is doable. I can certainly grab a 5-gallon pail during one of mom’s catnaps and do a quick cleanup of one area of my garden. That one bucket often leads to two…or maybe even more.
“One load of laundry” is much more attainable than devoting an entire day to the job. It’s an on-going job that is never truly accomplished anyway…so just do ONE load now. The rest will follow.
Sometimes it does help to break my big job up into lots of little “ones”. Spending time in the garden is one of those things I love to do, but also one of the things that is HARD to do while taking care of my sweet Mom. But, truth be told, even on the worst of days, I can get ONE thing done if I create a few bite-size chunks.
- Trim back the red peony and bag the leaves
- Dig out the aggressive lamium
- Divide the red iris
- Plant a piece of the red iris on the other end of the flower bed
- Trim back the clematis to 1 foot
- Spread compost
- Plant the tulip bulbs
- Mulch
- Repaint the birdhouse (a rainy day project)
Very few of those jobs take longer than 10 minutes to accomplish. A little here and a little there. One small bite at a time. Each little job accomplished leads to the satisfaction of being able to cross the big job off the list.
There you have it. My ONE contribution.
Now, I’m going to fold ONE load of laundry before a much needed night out with my ONE guy.
Tuesday’s Caregiving Tip: Laminated Photo Cards
Eventually, with very few exceptions, all those afflicted with Alzheimer’s lose the ability to remember names. In the beginning stages, it’s an occasional inability to remember the name of a friend. Somewhere in the middle stages of this mind crippling disease, my mother began having more trouble with names. I noticed names scribbled in notebooks, on church bulletins, on 3″ x 5″ notecards, and backs of envelopes. It was her tool for hiding the fact that she was beginning to forget the names of her close friends.
Momma belonged to a group of ladies from her church who called themselves “The Lunch Bunch.” Each lady friend took turns choosing the destination for their culinary adventures. It was a sad day when Mom decided she could no longer meet up with her friends. She told me it was because the lunch venues were so far away. In retrospect, the unspoken truth was Momma was embarrassed she could no longer navigate driving to unfamiliar places. Even sadder and more difficult to admit, remembering the names of her closest friends was becoming impossible.
Our church family has become Mom’s surrogate church family now that she lives with us. My mother enjoys visits from her new friends, but is nervous about not knowing their names. To ease her transition toward knowing the names of these new friends, I borrowed an idea from a friend I’ve never met who lives in Yorkshire, England. A fellow caregiver to her own mother with mixed dementia, Heather and I “met” on Creative Carer, Heather’s Facebook page dedicated to inspiring and giving ideas to caregivers for those living with dementia. Our mothers seem to be travelling parallel paths in the progression of their individual journeys in the uncertain world of dementia. Heather is amazingly creative in her approach to caregiving, capitalizing upon her mother’s lifelong passion for all things artsy and crafty (you’ll also find many creative art therapy ideas on Heather’s blog here). As her mother’s memory began to fade, Heather created some laminated pages for her mum, depicting life events, useful information, and snippets of joyful events that had happened in her lifetime.
With Heather’s brilliant idea as seed thought, I made some little laminated photo cards mom could keep in her purse. Each card has a photo of friends and family who come to visit, with names written on the card and perhaps a little reminder as to how mom knows that individual or family. I love seeing Mom discover these cards in her purse. It’s a perfect sundowning activity for her, as she loves to go through the contents of her purse during her late-night purse rummages.
Whenever a new friend comes for a visit, I take a picture of them with my mom, then create a card for her before their next visit. About an hour or so before a guest’s next visit, I take that card out of her purse and show it to her. She really appreciates having the card as a reference.
Next project on the horizon: create a few cards featuring her childhood, family, nursing school and wedding. Memories from her early years are still relatively intact; these cards may help Mom tell (and retell) her stories to visiting family and friends willing to sit with her for a moment and listen.
Six on Saturday: Fall’s White Blanket
We awoke to a light blanket of snow yesterday morning – our first (just barely) measurable snow of the season. The powdery dusting left my garden bench in the shade garden looking pretty, but not quite so inviting.
Likewise, the arch to the backyard looks cold and forlorn as it awaits the return of Clematis ‘Princess Diana’ and her lovely deep pink flowers. The locust tree stands tall as a backdrop and you can see the seed pods I mentioned last week waiting for the next windy day to knock them out of the tree. Though said seed pods are a messy harbinger of fall, the dappled shade the tree provides in summer makes it worth the extra effort. The tree’s canopy allows just enough sunlight to filter through so that grass can grow and part-sun perennials can thrive.
Momma’s blue pot precariously perched atop a few stacked bricks still needs to be emptied and readied for next spring’s new floral pretties. Marigolds or zinnias? Moss roses perhaps? Wait! Maybe I should plant it up with some of those bulbs I haven’t planted yet!
I never quite get around to trimming off the spent hydrangea blossoms. The pretty snowy caps have me convinced that’s not such a bad thing.
Our bird feeders each received cute little snowy rooftops. It may be gloomy and overcast today, but the feeders have been very busy with diners – especially blue jays, a wood pecker and cardinals – and the pesky squirrels.
I was happy to discover a flowerpot within the shelter of the front porch still shows off a bit of fall’s snapdragon magic.
There are still a few must-do items on my fall cleanup list, but most of what’s left will probably have to wait until spring. Although, our local weather lady tells me I might have a very small window of good weather toward the end of the week. Maybe, just maybe, I’ll get those last few tulip and daffodil bulbs in the ground. Meanwhile, I think I’ll make myself a cup of tea and poke around on our ‘Six on Saturday’ host’s site. It’s always such fun virtually touring a few gardens. Won’t you join me?
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Wordless Wednesday: My Mom “Yesterday” and “Today”
Tuesday’s Caregiver Tip: Busy Mind
Sleeping through the night is the goal of every caregiver of a loved one with Alzheimer’s. To increase the chances that my mother will sleep at night (and that I will too), one of my challenges as a caregiver is to keep her awake and occupied during “normal” waking hours.
Let me share a few of the things which I have found helpful in my caregiving journey.
Coloring – I have written briefly about the joy of coloring in the post “Tuesday’s Tip: Adult Coloring Books,”but would like to elaborate a bit. At first introduction to coloring, Momma didn’t want a thing to do with it. We bought a few “adult coloring books” and a set of colored pencils and hoped she would enjoy spending a little time coloring and less time sleeping. We had a paid caregiver who came on Friday nights and another who came on Sunday mornings. Each of these ladies enjoyed coloring, so they would get out their own coloring stuff and color, and soon Momma took interest and would join them. She’s actually quite good at it.
We soon bought her oodles of coloring books and this amazing colored pencil set. She would spend hours coloring, and even enjoyed sorting the colors in the case to her liking.
As her Alzheimer’s has progressed, her desire to color has diminished somewhat. She grows a bit frustrated by the super-detailed coloring pages she enjoyed at first, so we now purchase coloring books with bigger images and a little less detail. She has also gravitated over time to choosing just greens and yellows, so we keep her colored pencil case supplied with plenty of shades of green and yellow.
Puzzles – I’ve written about how much puzzles have been a blessing in our caregiving experience, first writing about it in a pre-blogging Facebook note titled, “Puzzled.” As with any other creative activity, if I ask Mom if she wants to do a puzzle, she’ll usually say an emphatic “No!” But, if I just sit down near her and start working on one, she’ll join the fun and will soon be pushing my hands away so she can work on it herself.
Not all puzzles are created equal when it comes to being friendly for those with cognitive or memory disorders, arthritic hands, or poor eye-sight. I am pretty impressed with puzzles by Springbok. Their puzzles are cheerfully bright and colorful and aren’t baby-ish. Puzzle pieces are larger and thicker than most puzzles, making it easier for elderly, shaky hands to handle.
Bible and Devotional Reading – Momma is a woman of faith who loves the Lord Jesus with all of her heart. It warms my heart to hear her talking with Him in prayer throughout the day and the night. Several of her well-marked Bibles will attest to the fact that she was a faithful student of the Word of God. Sadly, Alzheimer’s makes reading for understanding very difficult and Momma no longer reads her Bible like she used to do so faithfully. How thankful I am to know that even when she can no longer read, the Word of God stored up and treasured in her heart will still speak to her and bring her comfort.
Mom was always a voracious reader, but can now only read small bits with understanding, and she may read and re-read the same page for an hour. Devotional books are perfect, as each daily devotional is only a page or two in length, succinct in thought, and features just one or two verses from God’s Word. I make sure she has several devotional books to choose from whenever she feels like reading a bit.
Fellow Caregivers, let’s hear your ideas too! EnCOURAGE one another daily!
Downsizing with Dementia
I’ve been in the process of a little ‘downsizing’ at my house. Fueled by the experience of having moved my mother out of a home she lived in for 52 years, I’ve been steadily going through closets, drawers, cupboards, the garage and basement…anywhere the seldom used ‘stuff’ I’ve accumulated through the years might be lurking.
It made me think about this little Facebook note I wrote –unbelievably, almost two years ago. We’re now a few chapters further into Momma’s story of her life with Alzheimer’s, with her now residing with us in our home so we can care for her full-time.
I am re-sharing this as a reminder to myself of how God has been present at every juncture of this journey. It is also my heartfelt desire to bring encouragement and hope to someone else on a similar journey in life.
Barefoot Lily Lady 