Best Dementia Staging Explanation EVER!

If you’ve been following my blog for any length of time, you know I love to write about gardening and share some of the 4,987 pictures of flowers I have on my phone.

You also know that I cared for my mom in the last years of her life while she battled Alzheimer’s. I documented and photojournaled our journey on my blog (and a bit on Facebook too).

You may not know that I have also been overseeing the care of my brother who has significant medical needs, including a form of short-term memory loss called vascular dementia, due in part to unchecked diabetes.

Having both a mother and a brother with dementia weighs on me. Add a grandparent from each side of my family to the equation and every forgetful moment takes me to the edge of tears every time I forget something more significant than where I left my car keys.

"Caregiving is a constant learning experience."

Because dementia has struck so close to home, I have diligently sought to educate myself about the subject and have made it my goal to share with anyone who is interested any knowledge I glean or resources I discover.

I honestly think I have read nearly every book ever written for dementia caregivers. This book is my personal favorite.

If you check my Google activity log, you’ll know why the ads that pop up on my Facebook account relate to items specific to dementia care. I belong to two Facebook groups for caregivers. I even have a Pinterest board related to Alzheimer’s. I listen to podcasts and follow the blogs and Instagram feeds of others who write or photo-journal about Alzheimer’s and caregiving. I belong to a caregiver support group sponsored by Agrace, the hospice that helped take care of my mom in her final year of life. I have often surfed YouTube channels in search of information related to caring for someone with dementia.

Today I would like to share information from the YouTube channel of one of my favorite medical experts, Dr. Natali Edmonds, founder of a dementia support community called Careblazers. In this video, Dr. Natali discusses the various stages of dementia and the three most common tools for measuring where a loved one with dementia (LOWD) is in the course of their dementia decline. In my opinion, it’s the best explanation you will ever get in 13 minutes and 24 seconds.

If you are caring for a loved one with any type of dementia, I highly recommend subscribing to the Careblazer YouTube channel. Dr. Natali posts informative, compassionate, bite-size videos on most any subject a caregiver might encounter on their caregiving journey.

If I Could Have a Caregiver Do-Over

“What is your life? For you are a mist that appears for a little time and then vanishes.”

James 4:14b (ESV)

God gave me the honor and privilege of taking care of my mother in the years that her mind waged war with Alzheimer’s. I am thankful that her brave battle with memory loss and frailty of body is over–the victory won as her affliction gave way to the ultimate healing when Jesus took her home to heaven.

My regrets are few, but if I could have a do-over of one caregiving thing, I think I would listen more carefully to the stories she told about her childhood. In my do-over, I would sit next to her more often looking through old photos, paying attention to the memories she shared. I would take care to write down all of the memories the photos coaxed from the places in her mind where the old stories still lingered.

With the help of my daughter, I did create a memory album for her, but it would have been nice had I started on the album sooner, capturing those stories for her to read and re-read as her memories slowly faded away.  

While I cannot roll back the hands of time, I do find joy in knowing she is free from the bondage of memory loss and frailty of body. I find hope in knowing that those precious moments we did share are only a glimmer of the immeasurable time we will share together in eternity.


This post was written for Five Minute Friday. One word. Five minutes to write about it. Today’s word: COULD

Rewind: Swimming Faces

Another post in my “Rewind” series. This post originally appeared on October 23, 2016 as a Facebook note in my pre-blogging days. As I journeyed alongside mom with her diagnosis of Alzheimer’s, I learned through her experience many things about the affect this disease had on her world. As my mother’s caregiver, I have leaned heavily on the experiences of those who have traveled this road ahead of me. In sharing my experience, it is my hope and prayer that someone else will be helped and encouraged.

Even though Momma lives in a little one-bedroom apartment, many days she has a hard time remembering where her bedroom is located. A few minutes ago, I overheard her talking to herself saying, “Now, where is my bed?” Groaning with each step taken toward bed, I could hear my sweet mother then exclaim as she entered her room, “Oh, there you are! I can never remember where you are.”

I’ve been staying overnight at Mom’s house since September 11th. That was the night when mom had a severe separation from reality, scary hallucinations, and I had the realization that it was no longer safe or wise to leave her in her apartment alone. Sadly, she was so afraid to stay in her room. Every time I would get comfy and start drifting off to sleep on her couch, she’d come in the living room, flip on the light, then stand in front of the couch asking me if I was awake. I would get up, gently guide her back to the bedroom, do the room search (looking for the intruders she was so sure were there) and I would try to reassure her that everything was okay.

I noticed that even during naps taken during daylight, mom wouldn’t sleep under her quilt. I would often find it pushed to the corner of the bed or on the floor. On the third night of no sleep, Mom told me that there were “faces swimming” on her bedspread. She was clearly disturbed by its presence. So, I replaced the bedspread with an extra blanket and mom finally settled down enough to sleep for a few hours.

The next day, a very kind friend from church came to sit with mom so I could take my brother to a medical appointment. When I returned later that day, I related the story about the bedspread to her. She took one look at it and said, “Of course there are faces! Look here! See the eyes?” In all the years that the paisley bedspread had been covering my parents’ bed, I had never noticed that.

As I thought about my sweet friend’s observation, I recalled reading in several articles related to caring for individuals with Alzheimer’s that busy fabrics give some patients great anxiety and that it is helpful to use solid colors in clothing and decor choices. Even busy wallpaper patterns can take on frightening proportions that terrify the confused mind. With that information in mind, that very day, I stopped at my local Target and purchased a plain, simple white bedspread for her.

No more swimming faces – and every so often, I catch a heartwarming glimpse of mom gently fingering her new bedspread, running her hands across the soft fabric as she drifts off to a much more peaceful sleep.

First posted as a Facebook “Note” on SUNDAY, OCTOBER 23, 2016

Legal Documents EVERYONE Should Have

Back in 2014, making sure that mom had all her legal paperwork ducks in a row was one of the smartest investments we made in both time and money in preparation for the Alzheimer’s road ahead of us. Thankfully, mom and dad had a good foundation, having already met with their lawyer to get their house in order for the future as soon as my dad began having health struggles.

They had written their wills and had also established two essential (in my opinion) legal instruments:

  1. Power of Attorney for finances and property
  2. Healthcare Power of Attorney (state specific form)

If you do not have both power of attorney documents and your loved one is determined to no longer have the capacity to make their own decisions, “Guardianship of the Estate and Person” may be necessary. You will likely have to petition the Court to appoint a guardian to make the decisions not covered by the missing POA document. Knowing in advance who will be entrusted with these responsibilities is important, so be sure you have both.

Make your Power of Attorney for Finances and Property effective now so your agent can quickly handle financial matters. Your agent will need to sign a “Duties and Liabilities” form, but the agent can start helping you immediately. My husband was my mom’s POA for finances and, because that “effective now” box was checked, he could help my mom with her banking, put all of her bills on autopay (so she didn’t have to deal with the mail), take care of matters related to her investment accounts, talk to her banker, pension fund administrator, and insurance companies. He did not have to wait until she was declared incompetent.

In addition to the above essential documents, we found the following to be beneficial as well:

  • Make sure “special powers” are included in your POA document. In my state of Wisconsin, the standard form available for download does not include provisions for gifting or grant powers to your agent to amend trusts or beneficiary forms. Your attorney can help you create a “Special Durable Power of Attorney” with trust provisions. These powers can be very helpful when a person is trying to protect assets from long term care costs.
  • Consider creating a “special needs trust” as a place to shelter or reserve enough cash to be able to take care of things not covered by Medicaid. In our state it is called WISPACT. My brother lives in a nursing home. I am his POA for healthcare and my husband serves as his POA for finances. My brother had been unemployed for several years and had no savings and no income (too young for Medicare), and would quickly spend down a modest retirement account he had from a previous employer. With the “special powers,” Wayne established a WISPACT fund for him to set aside some of my brother’s retirement money prior to Medicaid spend-down. This is NOT a way to cheat the nursing home. For us, having this fund means we don’t have to dip deep into our own pockets to pay for things my brother needs that are not covered by Medicaid. For example, if my brother needs new blue jeans or a dental appointment, we go ahead and take care of that need, then submit an either an invoice (e.g. for the car repairs) or receipts (e.g. for blue jeans) with a “request for distribution” to WISPACT. The expense will then be reviewed by the trust manager to ensure that the expense meets public benefit rules, and the bill is taken care of or we are reimbursed. The trust is irrevocable, meaning that no funds will be returned; when my brother dies, any funds left in that account go to the state.
  • Prepay funeral expenses – Mom and dad had already chosen and paid for their cemetery plot and, thankfully, she had shown me where the deed was located earlier in her disease process. My husband and I took care of pre-paying mom’s remaining funeral expenses based upon both her written notes as to her desires and a conversation we had with her in an earlier stage of Alzheimer’s. We have done similarly for my brother. He’s only 61, so could live much longer. Pre-paying his final expenses locks in today’s pricing.
  • A Caregiver Agreement – While mom was still able to make her own decisions, she expressed concern knowing that I may someday have to quit my job to take care of her. When we sat down with mom’s attorney, who specialized in elder law, he advised that we draw up a caregiver agreement – a legal contract which defined the dollar amount and the number of hours she would pay me in caring for her. Truth is, it became a 24/7 job, but our agreement made in advance made it possible for me to be paid as her family caregiver. Momma never got to the point of Medicaid spend down. If she had and her finances would have undergone the “5-year look back”, having this legal agreement would help protect me financially.
  • Advanced Directive – None of us knows when we will take our last breath. How thankful I am that mom and I had that difficult conversation about end of life. And I am doubly thankful that she took care of creating an Advanced Directive. This helped me as her POA for healthcare (and caregiving daughter) make vital end of life care decisions on my mom’s behalf when she was no longer able to make those decisions herself.

I gave this post the title “Documents EVERYONE Should Have,” but should probably mention a bit of a caveat. An individual with Alzheimer’s will hide things that are important…including paperwork. In fact, they may throw them away. When my mom was in the mid stages of the disease, I decided it was time that I took her important papers home with me for safe-keeping (including that cemetery deed I mentioned above). However, the paperwork was still extremely important to my mom. I decided to make good photo copies of her originals and create a special binder of all that information for her. She absolutely loved it. She would spend hours paging through it, double-checking things, and would write her questions and thoughts on the margins. Knowing I had the originals, it was all good.

Alzheimer’s: Signs Along the Way

My dear readers, I think it’s about time to meet up for another cup of coffee and a chat. I thought we could talk about a question I am often asked.

What signs did you see that made you suspect that your mom was experiencing memory loss?

One place to start when gathering information about Alzheimer’s is the aptly named Alzheimer’s Association. You can click here for their Top 10 list of signs, but here’s my list of signs we noticed along the way:

  • Repeating stories multiple times at the dinner table.
  • Piles of stuff all over the house – very unusual since she was normally very tidy. The guest room bed was covered with several inches of mail and miscellaneous paperwork.
  • Finding everyday objects in odd places: her cane propped up against the fridge on her countertop; her purse in the fridge; keys under her pillow; toothpaste and toothbrush on top of her dresser; odd stuff in her purse…like banana peels wrapped like mummies.

Mummy-wrapped banana peel from Momma’s purse

  • Asking the same question over and over again.
  • A very messy calendar with lots of ‘White Out’ covering myriad mistakes (and her complaining that someone else was writing on her calendar).
  • Mom had always been a list-maker and would usually keep her lists in an organized notebook. Now, her lists were everywhere! You could find her notes to self on the backs of envelopes and snatches of paper; in multiple notesbooks or legal pads; in the margins of her calendar, etc.
  • Missed hair appointments. Her weekly hair appointment had been her habit for decades – it wasn’t like her to miss one.
  • Everyone loses their keys from time to time – believe me, I know! But the key hunt became a daily routine (sometimes several times a day) because she would hide them where they’d be safe.

Our solution to the hidden keys problem was to attach a “tile” which would allow us to use an app on our phones to find them. (Click here for info)

  • Ordering multiple sets of checkbooks; we counted five separate sets of checks for one account.
  • Hiding her checkbooks.
  • Unbalanced checkbooks and a dining room table littered with bank statements with notes of confusion written on each one.
  • Over-purchasing other items too: toilet paper, ballpoint pens, Kleenex boxes, dishwasher soap, spiral bound notebooks, and legal pads.
  • Repeating stories. Oh, I think I already said that.
  • Phone calls from neighbors reporting unusual behavior, including a concern over momma being outside ALL day in pretty much the same spot. And another with concerns about her driving.
  • A diminished desire to attend church or get together with her friends.
  • Hidden stashes of food – especially cookies and chips. We would also find partially eaten food here and there around the house. It made me nervous to think she might pick up spoiled food and begin eating it again.
  • Multiple cans of Coke begun, but not finished.
Momma can’t remember she already has a can of soda open.
  • Unflushed toilets. Mom had always been VERY particular about remembering to flush toilets.
  • Inordinate amounts of junk mail.
  • She somehow got suckered into two vehicle protection plans and two sewer and waterline protection plans. Unfortunately, she never used them because she didn’t realize she had them.
  • She kept renewing her magazines, even if she had YEARS left on the subscriptions.  
  • Losing large sums of cash. She once took $1,500 out of the bank for a vacation I was taking her on, but lost the money somewhere between the bank and home. We never did find that money, and her credit cards were in the same wallet.
  • Hiding valuables and claiming they were stolen.
  • Growing frustration with using a telephone or a once-familiar remote control.
  • When dining in a restaurant, she was no longer able to calculate a tip. Mom had always been an adventurous eater who was always game for trying a new restaurant. Whenever I would visit, she began going to the same restaurant and ordering the same thing each time. Or, without opening the menu, she would say, “I’ll have what she is having.”
  • Eating an entire carton of ice-cream in one sitting (we started buying it in pints and half-pints).

Most of these changes were subtle, but they began to add up. Somewhere in the middle of all of these changes, I knew in my heart it was time for me to make sure I invited myself to my mother’s next doctor’s appointment. I knew that he and I were going to have to become allies in my mom’s future care, so I stopped by her physician’s office and dropped off a copy of my power of attorney for healthcare paperwork so that they could be scanned into her record. I also wrote a letter to her primary care physician outlining my concerns. Now we could begin the process of me being in the loop related to care discussions and decisions. It was a hard step, but a necessary one.

Well, it looks like my cup of coffee is on empty and I did all the talking. Sorry about that. If I may ask, if someone you love has Alzheimer’s, what were some of the signs YOU noticed in your loved one?

Five Helpful Purchases for the Alzheimer’s Caregiver

I’m on the other side of caregiving now and am looking back on that experience and wanting to share a few of the most helpful purchases my husband and I made to assist us as we provided care for my mother.

  1. Mattress Protection and plenty of bedding – nearly every person who struggles with memory loss will come to the point where incontinence is a fact of life. One of the best purchases I made was this mattress cover. We had a hospital bed, so purchased a Twin XL. This particular cover actually was waterproof and saved our mattress from certain ruin over and over again. It completely covered the mattress — trust me, this is important. I only needed to wipe it down with a disinfectant spray, but it also washed up nicely in the washing machine on warm. I would give it a tumble drying on air-dry with several dry towels romping around in the dryer with it. We had purchased a second-hand hospital bed and it fit that mattress very well. One of the nicest things about this cover was that it was quiet–no plastic crinkling sounds when moving the bed position, or just tossing and turning a bit at night.
The very best mattress cover we tried. It’s worth your money to purchase two so that you have an extra for those nights when the accident is …ummm…really messy.

2. An Alzheimer’s friendly clock. There are many clocks available for purchase, but I can only begin to tell you how helpful this clock was – especially in the early and middle stages of dementia. We bought two. One for mom’s bedroom and one to keep in the kitchen near her spot at the table. There comes a time in the Alzheimer’s journey where the ability to measure time is lost. You can read my post highlighting the benefits of this clock in my previous post, “When Time Stands Still,” which you can find here. To be honest, now that we’re retired and not marking time with daily routines, hubby and I reference this clock ourselves when we’re having a “what day is it anyway?” moment of our own.

3. These waterproof pads. Yes, disposable ones are nice, especially when your loved one is sick and having bouts of diarrhea. However, these are wonderful for everyday use. I recommend you purchase the largest size so as to cover as much of the bed as possible. More often than not, whatever accident happens will be caught on this pad, which will save you changing all of the sheets and blankets in the wee hours of the morning. These pads will also come in quite handy if your loved one likes to sit in a recliner or other upholstered chair.

Don’t worry…they come in colors other than pink

4. A wireless security camera. I know there are a lot of camera options out there these days. This D-Link camera did a great job of helping us see mom when she would get up at night – its night vision and ability to pan and tilt remotely was so helpful. This camera helped me in the earlier stages when she was living on her own and I just wanted to check-in and make sure she was okay. In later stages when she needed to live with us, it picked up on her motions at night alerting me to any needs she might have for my help or intervention.

D-Link Indoor Full HD WiFi Security Camera, 2 Way Audio, Pan Tilt Zoom 1080P, Motion Detection, Night Vision, MicroSD & Cloud Recording, Works with Alexa and Google Assistant (DCS-8525LH-US)

5. And just for fun, we bought this colored pencil set and plenty of adult coloring books. My mom just loved them when she was in the middle stages and earlier part of late-stage dementia. Not only did she enjoy coloring, but she also enjoyed sorting the pencils into color groupings. The zippered case was nice too…it was amazing what all she could squirrel away in there along with her pencils.

Interesting thing to note: as the disease progressed, Momma gravitated toward using only green and yellow in her coloring. This meant that over time we bought various colored pencils sets to replace the greens and yellows and now have LOTS of colored pencils in every color but green or yellow.

Playing in the Dirt Again

It feels good to be outdoors playing in the dirt again. In a day when COVID-19 has us squirreled away indefinitely in the relative safety of our own homes, spending time in my garden this week has been a welcome repose and heartsome encouragement.

Crocus are already showing off their comely petals in shades of purple, and a few white ones too. Blue muscari brings teeny-tiny punches of the deepest, bluest blue in patches scattered here and there. Brilliant, sunshine yellow clusters of daffodils dot my Schumann Drive landscape, with tulips promising to take their turn in the next few weeks.

As I pull back the winter blanket of leaves and mulch in one bed, then another, I’m seeing hints of more beauty yet to come. Peonies have poked their little red tips about an inch above the ground and I’m already dreaming of their beautiful petals in reds, pinks, white and a very special yellow one too. The foliage of my beautiful daylilies is already several inches high and seem to whisper their promise, “Summer is coming.”

Some flowers are spilling out of the bounds I had imposed on them, so I begin digging up a few of the plants nearest the garden’s edge. Some go in my compost bin, a few are transplanted elsewhere, but most are placed in a big plastic tub marked ‘Free Perennials’ and placed at the curb end of my driveway where they are offered to those passing by in the neighborhood. Each offering of future beauty is placed in its own plastic or paper bag, with any information I can offer about the plant scribbled on the bag. The bin is usually emptied in a day or two. I find it a lovely thought knowing that little bits of my garden’s loveliness will soon be springing up in other neighborhood gardens.

Today, as I plunged my garden trowel into the spring-softened dirt to scoop up one of the plants for my driveway offerings, I was delighted to find a sleepy toad still nestled in the dirt on my trowel. I breathed a sigh of relief that I didn’t injure him; it’s an honor to find toads, as I know they will do me countless favors in the months to come as they feast on slugs and snails and other garden pests. I pried my little plant offering from the dirt, then tucked the toad back in under a blanket of dirt where he could continue his slumber before awakening as my garden helper.

Today’s discoveries included unearthing a bunny nest and getting to see the cute little bunny butts within (I know I will regret thinking they are cute when I start seeing tops of my plants nibbled off as bunny fodder). Unlike toads, bunnies are not known for their propensity for helping in the garden.

While I will not refuse offers of human help in my garden, I rather like the solitude it offers. It’s a time to pray and to reflect on life’s blessings. Any frustrations I might be feeling seem to disappear into the soft earth as I work it. This solitary time in the garden is also a great time to sing (or hum) in praise to God. With the discovery of my little garden friends, it seemed fitting that my mind went to a song I learned when I was 11 or 12 years old, very early in my Christian walk. We don’t sing this hymn much anymore, but I recall learning the song in a club for kids called Awana. Not very long ago, I taught the song to the kids in our Sunday School so they would have it in their hearts too. It would be my pleasure to share the lyrics in the hopes that you would be blessed by them, and that your soul would find rest in the thought of all the wonders He has wrought.

This Is My Father’s World | Maltbie D. Babcock

This is my Father’s world,
And to my list’ning ears
All nature sings, and round me rings
The music of the spheres.
This is my Father’s world:
I rest me in the thought
Of rocks and trees, of skies and seas—
His hand the wonders wrought.

This is my Father’s world:
The birds their carols raise,
The morning light, the lily white,
Declare their Maker’s praise.
This is my Father’s world:
He shines in all that’s fair;
In the rustling grass I hear Him pass,
He speaks to me everywhere.

This is my Father’s world:
Oh, let me ne’er forget
That though the wrong seems oft so strong,
God is the ruler yet.
This is my Father’s world,
The battle is not done:
Jesus who died shall be satisfied,
And earth and Heav’n be one.

Taking Mini-Breaks for Creativity

I have all sorts of excuses for why I’ve been a little hit-or-miss in the blogging department. The best reason I can proffer is that I’ve been taking little breaks for a bit of creativity of a different sort.

First up, a very special sewing project. My son sent me a text one night asking if I would make a Christmas stocking for a teen who is staying with them. I had made a stocking for each of my grandchildren prior to their first Christmas and he was hoping Danni could have a similar stocking too. I was so very glad he asked because I had it in my heart to do something for her, but wasn’t sure what she would enjoy. This would be fun!

Continue reading “Taking Mini-Breaks for Creativity”

Pumping Gas and other forgotten things

Journal entry dated May 30, 2019

My car ‘dings’ a gentle reminder when it needs refueled within the next 50 miles. My hubby usually does this for me, but today I’ll need to care for this task myself because I’ve ignored the dings a little too long.

My Dad had always filled Mom’s gas tank too. When Dad knew he was losing his battle with cancer, that’s one of many things he taught my mom how to do. She tried a few times after he left for heaven, but then found a gas station that would send an attendant out to pump the gas for her for just a few cents more per gallon. My brother Brad thought it was silly to pay extra, so he tried to show her how to pump gas too. Mom just couldn’t remember the steps. Brad didn’t have his own wheels anymore, so didn’t mind filling the tank for her so he could buy himself a cup of decent coffee, a donut and a pack of smokes.

Today I confidently pulled up to the gas pump to fill my own tank and was happy to remember this recently learned factoid: there’s a little left or right arrow next to the gas pump symbol on your dashboard’s fuel gauge – it tells you which side of the car your gas cap is on. I would never have to turn around and pull up on the other side of the pump again. Cool, huh?

Have you ever noticed the arrow next to the fuel pump symbol?

My glib confidence came to a screeching halt when I reached for my credit card. Now, I only carry two credit cards, yet I was stumped. “Hmmmm, I could text Wayne and ask him.” But that would be embarrassing. He has reminded me time and time again which one to use to purchase gasoline. How could I admit that I didn’t remember again?

I used to keep a reminder sticky note on the card, but that had fallen off somewhere along the way. After a few minutes of inner debate, I chose one of the cards and got out of the car. It had been so long since I pumped gas I had to read the instructions on the pump. Twice. I felt the eyes of the kid at pump #3 watching me, trying to figure out if he should assist the confused lady at pump #4. I felt embarrassed.

Was this how my mom felt when she knew she was forgetting things?

I pumped the gas and printed the receipt for my hubby’s use in updating our budget spreadsheet, then headed to visit my mom. Hot tears overwhelmed me as I drove those 9.9 miles. I cried because I was pretty sure I had guessed wrong on the credit card. I cried because I now understood how helpless Momma felt. Mostly though, I cried because forgetting things scares me. I’m walking this road of memory loss with my mom and I know it’s hard (and sometimes harder) on the one who is the caregiver. It truly grieves my heart to think that my husband, daughter or son, or a grandchild may walk this road with me some day.

I sat in the parking lot of mom’s assisted living facility and blotted my tears before heading in to see her. My heart smiled as Mom exclaimed a little yelp of joy when she saw me, and even told the friends seated at her lunch table, “See that lady there? She’s my best friend.”

After that heartwarming visit, I made a quick stop at a nearby gas station to buy a cup of coffee, then headed another block or so to the nursing home where my brother resides to visit a bit and bring him a cup of his favorite coffee. He was sleeping, so I left his coffee on his nightstand and headed home to get busy on my laundry. When I arrived home I gave Wayne the day’s receipts and was bummed to learn that, yes, I used the wrong credit card for the gas.

Alzheimer’s is a frighteningly hard path in life, but my walk alongside Momma has also given me firsthand experience seeing how God walks with us each and every step of this road paved with memory loss. While an underlying concern of personally having to experience this disease is always present, I have an even greater confidence God will give those I love much wisdom in walking alongside me if Alzheimer’s is ever my future.

In the meantime, I’m going to smile, grab my Sharpie marker, and write “GAS” in great big letters on my credit card as a visual reminder for the next fill-up.

Assisted Living: What to Expect

When one wrestles with the thought of placing a loved one with memory loss into assisted living, many questions come to mind while making that life altering decision. Thankfully, there are many good books related to caring for a loved one with memory loss…and I’ve probably read most of them. If I could only recommend one, it would be Jolene Brackey’s, Creating Moments of Joy. [I wrote a little book review about this book here.]

I love this page. I live this page.

It’s important to have realistic expectations concerning assisted living memory care.

It has been almost four months since we moved Momma into assisted living at BeeHive Homes of Oregon, WI. She has made a great transition – not without its hiccups, but BeeHive is definitely a gift from God for my sweet mother. In these four months I have fallen in love with each resident who lives there with her and each one responsible for her care.

There are 16 rooms at BeeHive–at any given moment you might find my dear mother in any one of them–although she has her favorites. She loves to nap in Carol’s room, enjoys the sunny window in Caroline’s room, and can often be found rearranging pillows and tending to every one else’s babies in her neighbor Kathi’s room.

On any given day, my mom might be wearing her favorite outfit…or might be looking cute as can be in another lady’s pajamas. The other day I noticed mom wearing her nearby neighbor Roy’s watch; she also had his remote control and he had hers. I’m really not sure who has her colored pencil set, it’s been on the lam for a few weeks, but know they’ll turn up some day…she probably put them in someone else’s drawer for safekeeping on one of her daily adventures tooling around in her wheelchair.

Momma is a gatherer. If something is missing from someone else’s room, it can reasonably be assumed Charlotte probably has it for safe-keeping in her purse, or wrapped in a blanket and tucked away in a drawer in her room. Toilet paper is irresistible. An unattended doll or stuffed animal won’t be lonely for long if she can help it. She even managed to pick up an unattended cell phone that belonged to one of the hospice staff. I half-jokingly remind the staff that if something is missing, just check Charlotte’s purse and drawers…it’s probably there.

Only one of these dolls belongs to Momma – but they are all equally cared for and loved. [Photo credit: Kathleen Zelinski]

Slowly, but surely, I’m learning whose stuff belongs to whom (most of it is labeled). I spend the first few minutes of my daily visit returning things she has borrowed and retrieving things she has tucked into places where they don’t belong and returning it to the right place.

One thing is for sure…Momma belongs and is in the right place.