If I Get Alzheimer’s

Today I complete another trip around the sun. Most people get a little forgetful as they age – you know, the searching for the glasses perched on top of the head sort of thing. As I now approach the middle of my sixth decade of life, I am keenly aware that I am spending a tad bit more time looking for mislaid things, and much more time trying to figure out the names of people whose names I should remember. My sweet mom had Alzheimer’s in her later years of life, so I will confess that my own little forgetful moments cause me to think about what may be down the road for me. I suspect the day is coming when my memory will fade, and perhaps gradually vanish.

I write this post for any of my readers who are faced with loving and caring for someone they love who has heard their physician say “Alzheimer’s” when delivering a diagnosis. My dear family, I especially write these words to help you in the event that I someday hear my doctor say that dreaded word, or any other diagnosis which spells memory loss and dementia. You will likely need to make many hard decisions on my behalf – like taking away my car keys and deciding when it is time for me to live somewhere else. You were there when I made those difficult decisions on behalf of my mom and likely remember how hard that was for me. Take heart, God will give you wisdom for each decision and shed light on every step you need to take.

If I get Alzheimer’s, don’t ask me to remember; instead, reminisce and tell me stories from our past. What do you remember that we did together? Tell it again and again to me.

If I get Alzheimer’s, and I perchance do tell you a story from my past (or yours), you might want to write it down or record the story I’m telling you. I may tell you that story over and over and over again, just like your grandma did. Do you remember her talking about how she made her blue flower pots when she was in West Virginia, or how she dug the purple tablecloths out of the trash, or the stories about her wedding day? Just remember that the day will come when I will tell my story for the very last time and you will one day wish you could hear me tell it once again.

If I get Alzheimer’s, I might stubbornly refuse to bathe. The fear of bathing is the sad and stinky reality of this horrible disease. There might be a lot of fussing and crying, so let me tell you right now that when this time comes, you might find that hiring someone to help a for a few hours a day or two a week will be just the thing.

Tip: You might also find that dryer-warmed towels, blankets and clothes will calm my anxiousness. If all else fails, those disposable washcloths you can warm in the microwave are wonderful.

If I tell you I am cold, more than likely I truly am cold. In Alzheimer’s, the part of the brain which regulates body temperature and thyroid function goes kerflooey. Rather than subject yourself to turning up the furnace year-round, when you help me get dressed, start with a soft sweatshirt, then add lighter layers and keep soft blankets and throws handy.

If I get Alzheimer’s, I probably won’t remember to brush my hair. Will you please do it for me? Please use a detangling spray when you brush my mane of hair. I use a detangling brush, working from the ends and then all the way up to gently coax the tangles out. I like my hair long, but cut it short if you must. I might be mad at first, but will likely soon forget what once was.

By the way, if I tell you my hair hurts, I am not confabulating or telling a fib. When my hair gets dirty, my scalp truly hurts. It feels like bruises on my scalp, so please try to keep my hair clean. Perhaps a weekly trip to the hair salon for just a wash will be just the thing.

If I get Alzheimer’s, it might be challenging to keep me occupied, so here are some ideas for you to try. Gardening is my happy place, even if it’s just my own blue pot or three, encourage me to play in the dirt as much as I possibly can.

I also really love to work on puzzles, and might enjoy working on one with you.

Oh, and I like crafts. I once helped my grandkids create things with beads and paint; maybe, in time, it’ll be their turn to help me.

Baking was a joy to me when my mind was clear, so I might enjoy helping you in the kitchen. Even though I am old, remember that my mind is becoming child-like. What can a child do to help? Perhaps I can stir the batter, whisk the eggs, or pour in the bag of chocolate chips.

I could set the table, dry the dishes and wipe off the countertop. It won’t be perfect, but I will feel like I have made a contribution. It’s very important to feel useful.

If I get Alzheimer’s, remember that I’m a blue-jean wearing momma who likes pretty knit tops – ones with interesting details like ruffles on the sleeves and pretty buttons and lace. When you buy clothing for me, I suggest you buy two of each of my favorites. This will help you cope with me when I insist on wearing the same shirt over and over again. Unless you’re handy with a sewing machine, you might even want to buy two in the next size down, as those with Alzheimer’s lose interest in food as time goes on.

Perhaps you have noticed that I practically live in an apron. I wear one in the kitchen, while I’m cleaning, or when I’m gardening. If I get Alzheimer’s and the day comes when I become ‘messy momma’ at meals and perhaps need a bib, you might spare my dignity and try an apron instead. If I need to graduate to a bib, please make me some pretty ones…with lots of flowers.

If you can’t get me out of my pajamas in the morning and I stubbornly refuse to get dressed, just put on your pajamas and declare it “Pajama Day”! Conversely, if at day’s end I refuse to put on my pajamas, please remember that there’s no harm in wearing my clothes to bed. Unless the clothing is soiled, it truly isn’t worth the battle.

Dear family of mine, you know that I love the Lord with all of my heart and go to church every Sunday. If it is within God’s providential plan that I get Alzheimer’s, may I ask you to please take me with you to church for as long as I am able? It will do my heart good to gather and worship with my family and friends. One day you may find that I fidget too much or speak out of turn, then you will know it’s time for me to stay home with a caregiver while you go praise and worship our Lord, fellowship with your friends, and feed your soul. I’m God’s child and He will be near, whether I’m at church or at home, so don’t feel as though you are leaving me alone.

If I get Alzheimer’s, help me stay in touch with friends, be they old or new. I loved to have family and friends come for dinner. Much like your grandma did, I would probably enjoy company, but may get overwhelmed with crowds, so make it just a few. They may not understand what is happening to me, so gently explain before they come.

Remember how I used to take a photo of your grandma with her guests (or snag one off of Facebook), then give her the card to hang onto when her guests arrived. I would add their names and how she knew the people, then laminate the cards. It helped her remember their names. Maybe it would help me too.

If I get Alzheimer’s, please get me outside as often as you can. I always enjoyed walks in the park, so you might try that again. Push me in a wheelchair if you must, but let me enjoy nature and a bit of fresh air for as long as I’m able (and willing).

If I get Alzheimer’s, one day, you may find, I’m terribly unwilling to leave the house where I live. Going outside may become a terror, rather than a joy. If that day comes, try to create a comfy spot where I can sit near a window and enjoy the beauty of flowers and trees planted nearby, or a grandchild-painted birdhouse within view where a sparrow family might keep me occupied with their comings and goings.

If I get Alzheimer’s, you might like to know that I love to listen to music and would enjoy Christian radio. But if I’m anxious, you might find instrumental piano or guitar will help me to relax. I especially enjoy listening to great hymns of the faith. You’ll find what I enjoy on my Spotify.

If I get Alzheimer’s, please remember my children and grandchildren are especially dear and I hope they will visit when they are near. If they can’t come to love on me, please tell them to send me cards and sometimes include a photo for me to treasure.

If I get Alzheimer’s, I might like to carry a purse even though I don’t carry one now. When memories no longer stay tucked away in my mind, a purse might give me a handy storage space where I can pull out special memories any time I like. You might want to tuck a few of my treasures inside: little photo books filled with family (be sure to label who is who), something to color and an array of colored pencils, little books of flowers and butterflies to help me enjoy the things God made. Oh, and finding milk chocolate or a cookie in my purse would be especially nice.

If I get Alzheimer’s, the day may come when watching television is my thing. I really enjoy mysteries, but nothing super scary. Put on a gardening show or gentle children’s programming and I think I’d be content. I don’t like to watch television alone, so would you occasionally sit with me?

One more very important reminder. If I get Alzheimer’s and ever forget your name, please know that my heart still loves you and someday (sooner than you realize), the day will come when God will take me Home and make all things new, including my memory of how special you are and how very much I love you.

Blessed to Bake

I am truly blessed by God’s gift of being able to bake for my friends. While they will likely never recover from their illnesses and memory loss (on this side of Glory), I hope that my desserts and treats will help them recover a special lost memory of a yesterday and bring a little splash of momentary joy to their day.

I am blessed to spend three mornings every week baking for my friends. Each of these dear ones lives at BeeHive Assisted Living and Memory Care home due to some type of memory loss.

Photo by Oleg Magni on Pexels.com

I am blessed to see my friends smile and wave at me as I measure my ingredients into my big mixing bowl. I love hearing the buzz as they talk amongst themselves about what I’m doing — guessing what will come out of the oven.

I am blessed to hear the ladies reminisce about how they used to bake for their families, or how their mom used to make what I am baking for them.

I am blessed when the aroma of something sweet baking in the oven wafts through the building and a dear one stops by the kitchen to ask, “What are we baking today?”

I am blessed when one gentleman scoots his wheelchair through the door and sits in the kitchen chatting in a language I cannot speak. My friend doesn’t eat sugary treats, but he likes to keep me company and watch me bake for awhile, then nods off in a little middle-of-the doorway nap. I hope his dreams are sweet.

I am blessed when one special lady-friend giggles and says (several times a day), “Since you started baking here, it’s getting hard for me to button my pants!” Just the smell of something baking in the oven has a way of making my friends smile and helps them anticipate their next meal.

I am blessed when I serve another friend her dessert before her meal – allowing her to start her meal with dessert means she will likely keep eating the rest of her meal. Her dainty little smile on her face as she savors her dessert blesses me.

I am blessed when I am able to take a little break from my baking to help one of my friends find her room (or her purse, or her keys). This friend is special to me because she shares my mom’s first name and reminds me of her in so many ways. I love it when this tiny little lady takes my hand in hers and draws it to her lips for a little kiss and says, “I will never forget your kindness.”


This post is part of the Five Minute Friday blog link-up where I join up with Kate Motaung and a community of writers and bloggers of all ages and stages who gather on Fridays around a single word prompt to free-write for five minutes. Kate’s word prompt for this week is {recover}.

A Passion Enabled ‘Yes’!

Phew! I’m dead last (#56) in submitting my writing for the weekly Five Minute Friday link-up. FMF is an opportunity for writers of all abilities to gather each week around a single word prompt to freewrite for five minutes flat, then share our work and encourage one another. If this sounds like fun, you can learn more here.

This week’s FMF writing prompt is: ENABLE

The weather is trending warmer and my garden is calling me from underneath that ever-thinning blanket of white stuff. I am getting excited about once again feeling the earth beneath my feet as I meander through my flowerbeds pulling weeds, amending the soil, and getting my hands (and feet) dirty as I tend to the flowers thrusting their heads above the sun-warmed soil. Getting time in the garden will be a little trickier this year, as I just made a commitment which will ensure that I will wash my hands and feet a few days per week. A job. I wasn’t looking for a job, but my eldest granddaughter sent me a text about a job opportunity at her place of employment anyway. Her message said,

“PT cook?”

Violet works for BeeHive as a CNA (certified nursing assistant). If the name of her workplace sounds familiar to you, perhaps you may recall that my mother spent the last year of her life living in the care of BeeHive Assisted Living and Memory Care. I spent a lot of time there too, mostly loving on my mom, but helping where I could too. It was all little stuff that I could do when mom was napping: filling birdfeeders, pulling weeds, cleaning out cabinets, and an occasional organizational or word-processing project.

Every now and then I would get in a bake-someone-happy mood and would bring a big batch of cookies along with me and leave them in the kitchen for the staff to use as a snack for the residents (or themselves). Before long, I had a reputation for my baking. One resident loved cookies more than anyone I have ever met. I loved secretly tucking a cookie or two into June’s walker bag. Seeing her face light up when she discovered the treat made any effort on my part so worthwhile.

A week ago on Tuesday my phone rang. It was Gina at BeeHive and she wanted to let me know that there was a job opening assisting the cook with baking duties (yep, the same job Violet told me about). Gina wondered if I would be interested.

Interesting how God used my love for baking and my passion for the mission of BeeHive to enable me to say “yes” to this opportunity without a moment’s hesitation. I didn’t need to say, “Let me pray about it.” I pray for them often and I knew that God was blessing me with this chance to make a difference.