If we were having coffee…

Today I am imagining that we are enjoying a cup of coffee (or your favorite beverage) together. In my imaginary coffee klatch, you are asking me a few really good questions. Let me share with you how I would probably answer those questions.

“What things did you like best about having your momma in assisted living memory care?”

  • I was blessed to be able to sleep at night (all night).
  • Momma had more than one pair of eyes keeping an eye on her when she struggled with sundowning and couldn’t seem to stay in bed all night.
  • Momma was safer. Yes, she would fall, but she would fall at home too. At BeeHive she had more than one person available to help her get up again and a whole team of people assessing whether or not she was hurt.
  • I slept in a peaceful and quiet house. There was no longer the need to listen to a video monitor’s static hissing at my bedside as I drifted off into never-long-enough sleep.
  • There were no more bleary-eyed trips to her room in the middle of the night to help with toileting, clean up accidents, change clothing or bedding, or try to reassure her that she was safe from the imaginary people she would see lurking in the shadows at night.
Just a few of mom’s incredible caregivers

“What did you miss the most about being a caregiver once your mom was at BeeHive?”

  • I would tell you that even though I no longer had the responsibility of caring for her 24/7, I was still her caregiver. While some caregiving loved ones seemed able to separate themselves for a few days at a time, I found myself visiting my mom daily, providing care in the following ways:
    • Sitting with her at lunch to better ensure she would eat something without wandering away from the table.
    • Being visibly present for a few hours of her day.
    • Being her advocate. I communicated on her behalf with the staff at BeeHive, the nurses and doctors, and the hospice workers.
    • I simply cared for her by making sure she had everything she needed to be comfortable.
Momma had some very sweet friendships at BeeHive.

If you had to do it over again, what would you do differently in caring for your mom?”

I’d probably tell you, “Not much.” Each step of the journey with my mom was prayerfully taken. Decisions I needed to make were made with the help of God and those who love me best.

“What do you want your children to do if they someday have to deal with you having a diagnosis of Alzheimer’s too?”

I would tell my children …

  • Re-read my blog. I wrote it for you. You might find some helpful insights there.
  • Don’t be afraid to ask for help. Be specific about what you need.
  • I want you to feel comfortable making the decision to entrust my care to a place like BeeHive sooner, rather than later. Even if I protest at that time, it will be okay. It will be good for us.
  • Even if you’re not there every day, please don’t forget to visit me.
  • But most of all – even if I’m unable to remember who you are, I love you very much and always will.

We all need an Advocate

An advocate is someone who can help you speak up so that your needs are heard, your rights are understood and your problems are resolved.

Momma and I took an ambulance ride to the hospital on April 30. Momma was in a lot of pain. A LOT of pain. She had a fever and she could not support her weight on her legs. In retrospect, there were a few signs I should have paid closer attention to, but the acute pain came on suddenly. She went from being able to use her walker, to needing assistance to get out of bed, to not being able to get out of her chair (or “off the throne”) in the course of just a few hours.

I must confess that there was a twinge of relief when I was told she was going to be admitted. It meant that someone else was going to help me care for her during this medical crisis. It meant that someone was going to help me make decisions. Continue reading “We all need an Advocate”