Best Dementia Staging Explanation EVER!

If you’ve been following my blog for any length of time, you know I love to write about gardening and share some of the 4,987 pictures of flowers I have on my phone.

You also know that I cared for my mom in the last years of her life while she battled Alzheimer’s. I documented and photojournaled our journey on my blog (and a bit on Facebook too).

You may not know that I have also been overseeing the care of my brother who has significant medical needs, including a form of short-term memory loss called vascular dementia, due in part to unchecked diabetes.

Having both a mother and a brother with dementia weighs on me. Add a grandparent from each side of my family to the equation and every forgetful moment takes me to the edge of tears every time I forget something more significant than where I left my car keys.

"Caregiving is a constant learning experience."

Because dementia has struck so close to home, I have diligently sought to educate myself about the subject and have made it my goal to share with anyone who is interested any knowledge I glean or resources I discover.

I honestly think I have read nearly every book ever written for dementia caregivers. This book is my personal favorite.

If you check my Google activity log, you’ll know why the ads that pop up on my Facebook account relate to items specific to dementia care. I belong to two Facebook groups for caregivers. I even have a Pinterest board related to Alzheimer’s. I listen to podcasts and follow the blogs and Instagram feeds of others who write or photo-journal about Alzheimer’s and caregiving. I belong to a caregiver support group sponsored by Agrace, the hospice that helped take care of my mom in her final year of life. I have often surfed YouTube channels in search of information related to caring for someone with dementia.

Today I would like to share information from the YouTube channel of one of my favorite medical experts, Dr. Natali Edmonds, founder of a dementia support community called Careblazers. In this video, Dr. Natali discusses the various stages of dementia and the three most common tools for measuring where a loved one with dementia (LOWD) is in the course of their dementia decline. In my opinion, it’s the best explanation you will ever get in 13 minutes and 24 seconds.

If you are caring for a loved one with any type of dementia, I highly recommend subscribing to the Careblazer YouTube channel. Dr. Natali posts informative, compassionate, bite-size videos on most any subject a caregiver might encounter on their caregiving journey.

Assisted Living: What to Expect

When one wrestles with the thought of placing a loved one with memory loss into assisted living, many questions come to mind while making that life altering decision. Thankfully, there are many good books related to caring for a loved one with memory loss…and I’ve probably read most of them. If I could only recommend one, it would be Jolene Brackey’s, Creating Moments of Joy. [I wrote a little book review about this book here.]

I love this page. I live this page.

It’s important to have realistic expectations concerning assisted living memory care.

It has been almost four months since we moved Momma into assisted living at BeeHive Homes of Oregon, WI. She has made a great transition – not without its hiccups, but BeeHive is definitely a gift from God for my sweet mother. In these four months I have fallen in love with each resident who lives there with her and each one responsible for her care.

There are 16 rooms at BeeHive–at any given moment you might find my dear mother in any one of them–although she has her favorites. She loves to nap in Carol’s room, enjoys the sunny window in Caroline’s room, and can often be found rearranging pillows and tending to every one else’s babies in her neighbor Kathi’s room.

On any given day, my mom might be wearing her favorite outfit…or might be looking cute as can be in another lady’s pajamas. The other day I noticed mom wearing her nearby neighbor Roy’s watch; she also had his remote control and he had hers. I’m really not sure who has her colored pencil set, it’s been on the lam for a few weeks, but know they’ll turn up some day…she probably put them in someone else’s drawer for safekeeping on one of her daily adventures tooling around in her wheelchair.

Momma is a gatherer. If something is missing from someone else’s room, it can reasonably be assumed Charlotte probably has it for safe-keeping in her purse, or wrapped in a blanket and tucked away in a drawer in her room. Toilet paper is irresistible. An unattended doll or stuffed animal won’t be lonely for long if she can help it. She even managed to pick up an unattended cell phone that belonged to one of the hospice staff. I half-jokingly remind the staff that if something is missing, just check Charlotte’s purse and drawers…it’s probably there.

Only one of these dolls belongs to Momma – but they are all equally cared for and loved. [Photo credit: Kathleen Zelinski]

Slowly, but surely, I’m learning whose stuff belongs to whom (most of it is labeled). I spend the first few minutes of my daily visit returning things she has borrowed and retrieving things she has tucked into places where they don’t belong and returning it to the right place.

One thing is for sure…Momma belongs and is in the right place.