The past few days have been especially wonderful. Even though it sometimes felt like I was always cooking, having our kids and grandchildren gathered here and being surrounded by family refreshed my spirit.
Three nights in a row of good sleep didn’t hurt either.
Yesterday, our children, along with our three lovely granddaughters, lovingly came alongside us in support of a decision that Wayne and I had already prayerfully made. A spot in a lovely memory care home has opened up for my mother. Together as a family, we acknowledged that my mom deserves to receive the 24/7 care I can no longer give her.
This has been an especially hard decision for me, as it has always been my desire to walk Momma all the way “Home” here in our home. Now that mom is under home hospice care, it seemed like we were almost there. But God has given our family wisdom and showered me with peace in the midst of my tears.
Last night, Mom was out of bed before our Friday date night caregiver left our home at 10:30 p.m. Bless sweet Kathryn’s heart, she tried so hard to get mom to bed and asleep before her shift was over. It was not meant to be. Sleep would not come for Momma until a few minutes before 5:00 a.m.
Today I’m feeling physically worn out and emotionally spent. The frustrations of my sleepless night and my groggy, bone-weary body served as confirmation that the decision we made as a family is the right one.
Nine days from now it will be different.
Round-the-clock care will be available to redirect my tired and anxious mother back to the safety of her bed while I am sound asleep in my bed a few miles away. There will be no more trips up and down the stairs between my bedroom and hers all night long. No need for cameras and a video monitor to keep tabs on Momma. No need for baby gates, a multiplicity of grab bars, wheelchairs, walkers and bedside potty chair. Someone else will vigilantly monitor and carefully dispense drugs, change and launder soiled clothing and bedding, cajole her into bathing (and washing her hair), and keep her from wandering away.
I find comfort in the hope of being able to attend school concerts, participate in church activities, go to the gym more regularly, travel with my hubby, take an unhurried bath, have impromptu play dates and sleepovers with my grandkids, and play in garden dirt whenever I want. The list of all the things I’d like to do now is very long indeed.
As much as I look forward to finding our new normal, I also understand the transition will not be easy–for her or for me. The tears which trickle down my cheeks without warning remind me that I will miss taking care of mom. It has truly been an honor and a privilege and the hardest thing I have ever done.
I love Christmas. My husband would tell you that sometimes I go a little too crazy with the cleaning, baking, gift-wrapping and preparations. And he would be right. But the joy of a family gathering together makes it all worthwhile.
Our Christmas was different this year. Very different. In fact, I can think of seven differences right off the top of my head.
Difference #1 – I didn’t go crazy decorating this year.I put up and decorated our Christmas tree. And that’s it. And I didn’t even hang ALL of the ornaments. No garlands and lights. No wreaths. No candles, or anything else lurking in the bins marked “Christmas” in my storage area. I didn’t even put out Christmas napkins or plates.
And, you know what? I still loved it.
Difference #2 – Less Sugar. LOTS less sugar. My children and grandchildren have grown accustomed to favorite home-baked cookies and candies being stacked one atop the other in a special set of aluminum stacking trays I inherited from my mother-in-law. Every year each of five layers of trays included our favorites: Snowball cookies, candy cane cookies, chocolate fudge, peppermint patties, and soft ginger cookies dipped in white chocolate. Eyes would open wide whenever I’d bring the tray full of goodies out of the 3-season porch (our second fridge in the winter). Everyone knew yumminess was contained within those five layers.
This year, we’re all more conscious of sugar and what too much sugar can do to the body. I made one sweet treat and skipped baking Christmas cookies (with the exception of a batch of gluten-free snowball cookies for my hubby). There also weren’t candy dishes throughout the house filled with M&M’s and chocolate candies.
We still enjoyed Christmas – sans the sugar high.
Difference #3 – The guests. The people gathered were a sweet mix of family and friends. Our daughter and her family were part of the usual cast of characters at our celebration, but our son and his family could not come because they were using this time off of work and school to go on a family vacation. This year our gathering included our new friends and adopted family of the heart Herim and Waldely, and their sweet daughters Fabiana and Alexa. If that weren’t blessing enough, as a bonus, our celebration also included Herim’s visiting cousin Anna and Anna’s nephew Luigi.
In addition to hearing a lot of Spanish floating around the room, our little family relished spending time with our new friends as they shared with us more about their country of birth, Venezuela. We learned about the similarities and differences in customs, and laughed together over the cultural differences that one stumbles upon when being immersed in the language and traditions of the United States. Waldely shared the humor she found when Americans are introduced to a new food they don’t particularly like. We don’t just come out and say, “I don’t like it.” With a little raise of our eyebrows, we say, “Mmmm…interesting.”
I only wish I had taken pictures!!
Difference #4 – The meal. It was an early lunch, rather than an evening meal together to accommodate everyone’s schedules for the rest of the day. It was rather simple fare with ham and cheese sliders on the menu, rather than the egg-laden brunch casserole I had originally planned. There were a few equally simple go-withs such as deviled eggs, a little fruit tray, a few cut-up veggies with dip, potato chips, pickles/olives, and the like. Waldely added quesillo, a delicious traditional Venezuelan flan to our buffet spread. Oh, so yummy! Estaba delicioso!
Difference #5 – Gluten Free Options.In our family, we traditionally enjoy what we call “Wisconsin Buns” on Christmas Eve. It’s a recipe handed down to me by my mother-in-love. She made it almost weekly in their family, but I reserve making this special (highly calorific and very bad for you) “coffee cake” for Christmas Eve morning (and will also make it as the birthday treat for any family member who requests it). This year I also made up an experimental batch of gluten-free Wisconsin Buns. Not the same by any stretch of the imagination, but a surprisingly tasty alternative treat for my husband, who now finds allergies to be a daily struggle.
Difference #6 – The shopping.All of our shopping was done by Wayne on-line this year – mostly via Amazon. No trudging around in malls. No being tempted by impulse purchases placed strategically at every check-out line. The kids and grandkids made lists on their wish-lists and the purchased gifts came to our door only needing to be wrapped. I love watching the faces of each grandchild as they open a gift they really wanted.
Difference #7 – Momma was here, but absent. Though our house was full of people laughing and the sounds of children playing, Momma pretty much missed all of the Christmas activity as she retreated to her room and slept throughout the day. Last year she was able to join us in the family room and watch in delight as her great-grandchildren opened gifts. This year, Alzheimer’s has noticeably taken away her delight in all things social. Her inability to participate in our celebration was a little sad. In spite of that, I’m glad her number on the wait-list hasn’t come up at the memory care facility we have reserved for her. It brought me peace of mind being able to peek in on her in our home.
If Momma had a wish-list for next year’s Christmas gift, heaven would be at the very top of her list. No more tears or confusion. No more memory problems. No more excruciating knee problems. And together with her Lord and Savior FOREVER!
Encouragement comes in many ways in our lives. When your world feels a bit small while caring for a loved one with Alzheimer’s, having just a little dose of happiness in the form of an unexpected and very personal gift goes a long way. When the encouraging gift comes from a grandchild, well, that’s incredibly special.
My (not-so-little anymore) namesake granddaughter, Violet Cynthia, presented me with that type of gift yesterday at church. She said, “It’s not a Mother’s Day gift, because you’re not my mother. It’s just something special for you.” Continue reading “To: Mrs. Grandma Cynthia”
As I take care of Momma, the familial aspect of Alzheimer’s disease sometimes scares me. That fear isn’t all bad, in that it helps me realize that it is true that my lifetime is just a “few handbreadths,” a “mere vapor” that will pass before I know it. What I do with my days really does matter. Continue reading “Life: Just a Few Handbreadths”