Barefoot Lily Lady

I Know Who Holds Tomorrow

Happy New Year, friends!

This morning Facebook brought up a “memory” for me to enjoy with this post from four years ago today:

Janurary 1, 2015

In helping my mom with paper clutter, I found the family cookbook compiled for the Peet family reunion in 2000. Mom’s not doing much cooking lately, so I took it home to explore some of the recipes. Found a story on one of her recipe submissions that I’d never heard my mom tell before.

I loved the last bit where she reminisced about her own mother, sharing, “My Mom was a good cook and if you arrived unexpected at dinner time she always had room at the table and enough food to go around.” Mom added her own memory of the first time she made this recipe, reminiscing, “This is the first cake I tried to make after I got married. In fact, the date was January 1, 1955.” (I think it was probably 1956, as mom and dad were married in July of 1955.) She added, ” there was no cake – all bottom or top – depending which way you look at it. I had copied 1 1/2 tablespoons instead of 1 1/2 cups. It took me three tries before I got it right.”

It’s kind of hard to believe that four years ago today, this woman who, as of the past few days, can no longer tie her own shoes was living on her own and still doing simple meal preparation. Because the effects of Alzheimer’s had been noticeably present for quite some time, I was making frequent visits to help her out, often making meals for the week that she could warm up in the microwave. She may not have been cooking much, but she was still driving, doing her own grocery shopping, going to a weekly hair appointment. She was having trouble walking, but was still busily working in her garden, oftentimes worrying her neighbors because she’d spend the whole day out there with very few breaks. Now, she can hardly walk the 10 or so feet from her bedside to the bathroom. Back then she was still doing her own laundry – much to our dismay because that required going up and down stairs with her very unreliable knees. Now, she has a hard time figuring out how to fold a washcloth or towel.

In 2015 we knew that significant changes were on the horizon. We just had no idea how many changes there would be. Looking back, it’s easy to see how God was at work, guiding our steps, giving wisdom for decision-making, protecting Momma when we couldn’t be there, providing help when help was needed, and making each of us ready for the changes ahead of us.

It’s now the first day of 2019. We are seeing changes in mom’s physical and mental health almost daily. Mom now needs our help for nearly everything. One advantage of having walked through some difficult places in the past few years is the knowledge that our God was faithful in meeting our needs in the past, and He will not stop caring for mom in the days ahead.

We don’t know what 2019 holds for us, but we know who holds tomorrow.

Check out this video on YouTube:

Finding Joy

I’ve been working on sorting through some of momma’s old photos so that my daughter can help me get them into a memory album for my mom (and for me). I thought of this blog post from almost three years ago. As I read it once again I was reminded of how God has faithfully guided each and every step my husband and I have taken in caring for both my mom and my brother.

Barefoot Lily Lady

Facebook Journal Entry – February 2, 2016

Today could have been a very discouraging day. It seemed the Enemy was definitely intent on throwing into my path every obstacle he could muster as I tried to minister to my mom and brother.

It was obvious to me that from the moment mom awoke, her state of confusion was worse than I had ever seen it. As she stood in the middle of the kitchen of the home she and dad had built in 1962, she looked at me and said, “I’m really in a fog. I can’t remember where anything is. This doesn’t even look like my kitchen.”

My heart sank. Mom’s dementia was on the move again, claiming another piece of her short-term memory – and maybe even a little bit of her long-term memory as well. Together, we made it through the morning, enjoying one another’s company…

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Photos – Preserving My Family Story

Baby Charlotte Louise Peet — My mother as an infant in 1934

Nearly three years ago, several large Rubbermaid bins filled with photo albums, loose photos, pictures in envelopes, boxes and tins made the move along with my mother from Milwaukee to Fitchburg. As time and energy allows, I am sorting through these photos – some of them from several generations before hers. Though it slows my progress a bit, Momma enjoys flipping through the photos and “helping” me sort them too.

Photos of mom’s childhood and early adult years will sometimes prompt a story or two. Alzheimer’s keeps her from remembering the name of the city where she had lived for the past 60 years, or even what she had for lunch, but she can remember the names of aunts and uncles she hasn’t seen in years, along with a few of the details of events from her childhood. Continue reading “Photos – Preserving My Family Story”

Tuesday Caregiver Tip: The Christmas Letter

It’s a dilemma you might face as a caregiver. The one you’re caring for customarily sent out Christmas cards. How do you help them now when they can barely sign their name? Continue reading “Tuesday Caregiver Tip: The Christmas Letter”

Change is in the Air

God used last year’s hospitalization to help me see Mom needed to live with us.

Just over one year ago I wrote, “Honoring Your Parents: Nursing Home or Your Home?” (I invite you to read it here.) In that piece I endeavored to describe the process which had guided my decision-making related to caring for my mother as she slipped further and further into the horrible world of memory loss. Countless decisions have been made since moving my mother from Milwaukee to our home in Fitchburg. Each decision to be made along the way was generally preceded by some sort of adversity which required a change. We prayed about each change, each process, and each decision. Our faithful God always answered, shedding light on each uncertain step.

Change is in the air once again.

Mom’s advancing Alzheimer’s and a few recent difficulties have made it abundantly clear that we need to prepare for what the next level in mom’s care might be. There have been many “nudges” toward planning for the possibility of mom’s future care taking place outside of our home setting. But three things in particular:

A gentle nudge in the form of a well-timed question from Diane, mom’s palliative care nurse practitioner. “So, have you considered what the next step in your mom’s care might look like?” We had a good chat about that, and she gave me several helpful suggestions.
My hubby’s trip to India. I had to ask myself what I would do if something happened to him and he could no longer help me. Even though my family and friends rallied to help me out during his trip, it became very clear that caring for mom on my own would be at too great a risk to my own health and welfare.
My own frailty. I took a fall down a short flight of stairs in my own home. Aside from a scrape to my leg, a few sore muscles and toes, the greatest injury I sustained was to my own pride. The fall served as a wake-up call causing me to consider how Wayne would care for mom if something happened to me.

In the past year, I’ve looked at the websites of many assisted living places, have talked with a few representatives on the phone, traded emails with yet a few more, and even toured three that I liked and thought might be able to at least provide some respite care. In each case, I could not imagine my mother living there. After my little chat with Diane, I looked into a newer one she suggested and rated very highly. BeeHive is a 16-unit specialized memory care facility designed to look and feel very home-like. It is ideally located in Oregon just a few miles down the road from us, and about a mile from the nursing home where my brother resides.

Wayne and I scheduled a visit in early September before his trip to India. I was favorably impressed as I watched staff interact with residents. Compassion and respect were palpably present. We met Gina and Andy, two of the owners, and felt their pride of ownership and desire to serve their residents.

Standing on the sidelines, I watched one sweet lady receiving a hand massage. As the aide gently applied lotion and stroked her delicate hands, she looked into this resident’s eyes and spoke with her like she was a familiar friend. I knew in my heart this was the right place. A puzzle was in the works at a nearby table and I could hear one resident talking to another in friendly banter. Yes, I could definitely picture my dear Momma sitting at one of the tables, working on a puzzle and telling (or re-telling) one of her many tales.

After some discussion and prayer, we decided we would put down a deposit to reserve a place for mom. She is currently number four on their wait list. While it is still my heart’s desire to keep my mom at home with me until God calls her to her heavenly Home, I have great peace knowing I have another level of care reserved for her. My greatest comfort comes in knowing the One who is guarding our steps as He walks before us paving the way for whatever our future holds.

I know in my heart that my dear mother would skip along to heaven tonight if she could. Nearly every day she tells me so. Momma’s greatest comfort comes in knowing that Jesus promised He has a placed reserved for her in heaven.

Five Minute Friday: Balance and “Oasis Moments”

This post was brought to you (a day late, I know) courtesy of Kate Motaung’s blog Five Minute Friday and the word “balance.” Writers set the timer for five minutes and then free write on the word of the week. Check out more great posts and find inspiration for writing here at Five Minute Friday.

Things have been quiet on my blog. Good sleep is rare. Interrupted at best. Most days I live life in a sleepy fog. In my exhaustion, I’m having trouble staying focused enough to write. A few of my friends have recently heard my silence and inquired as to my well-being.

My friend Sue wrapped me in a big hug on Sunday and told me that she was quite concerned. She had observed that caregiving seemed to be taking its toll on me, noting that I looked really tired. I was not the least bit offended by her basically telling me that I looked terrible. It’s really hard to cover up exhaustion. God knew I needed this confirmation of what I already knew. Sue’s concern and assurance of prayer meant the world to me.

Rita caught up with me a few minutes later and kindly inquired as to how momma is doing. This sweet friend is known for her ability to see a need and step in to help. I have been on the receiving end of her prayers wrapped in practical ministries of help. Her loving and thoughtful ways have often helped me find balance as a caregiver as she sits with my mom while I try to get some sleep, or hangout with my grandkids, or take my brother to a doctor’s appointment, or go out to dinner with my husband. Her kindness refreshes my spirit.

Yesterday I heard the familiar “chirp” of my phone indicating that I had received a text message. My heart smiled when I saw it was from my friend Barb – also my sister in Christ, and former co-worker (from way too many years ago).

“How are you and your momma doing? Haven’t seen anything on FB lately.”

It’s been more than 20 years since Barb and I worked together, but we’ve managed to keep in touch via Facebook, chats via Messenger, and occasional lunch get-togethers at a restaurant somewhere between my here and her there. It has been awhile since I’ve been able to get away and have lunch with Barb, but her little “I noticed you” via text meant so much. It felt good to sit in my favorite chair wrapped in a soft blanket and “chat” for a bit about what’s going on in our lives.

Amazing how a timely word from a friend can bring a little balance to your life when life feels weighed down and precariously listing toward one side.

This morning a message from another friend, Danielle, popped up on my phone.

You’ve been in my prayers a lot recently, especially since I haven’t seen too many posts about your mom. I know I didn’t post much about Tim as things got worse, so I’m assuming things are really hard right now.

She was right. Danielle knows firsthand what life as a caregiver can be like, as she takes care of her father-in-law in his struggle with memory loss. She walks this really hard road a few steps ahead of me and knows how to pray…and she does pray.

It’s not just these four friends who’ve helped me find balance. It’s my hubby who helps in countless ways, the friend who buys me a coffee on a whim, or the one who pops a surprise care package or a sweet card in the mail. Or the thoughtful neighbor who recently rang my doorbell and asked me to point him in the direction of something that needed to be done in my garden.

I’m so thankful for each and every one of the wonderful people God has put in my path. Through your prayers and acts of kindness, God refreshes my soul with “oasis moments” and helps me find balance in my life as a caregiver.

Wordless Wednesday: For the Love of Pie

Encounters with Grace

Saturday, November 25, 2018

In his sermon last Sunday, our pastor reminded his congregation that it is easy to miss the beauty of God’s grace in our every day lives. We are so accustomed to receiving his daily gifts and benefits we often grow blind to His goodness and loving kindness toward us. Pastor Jeremy challenged us to watch for ways God demonstrates His abundant grace toward us. To do this, he gave us an assignment asking us to take out a sheet of paper and list 20 things God has given us that we do not deserve.

I’ve been watching and taking notice this week – here’s my list with a little bit of explanation on each.

My copy of God’s Word – with real pages I can turn and plenty of room in the margins to jot special notes. By God’s grace, my granddaughter Violet loves God’s Word and has the same Bible.
Our matching Bibles
The Grace of Family. Growing up in a family who lived several states away from our kinfolk, I recognize full well the grace of having my family close.
Veiled grace. Our friends had their baby on Thanksgiving Day. My first thought was, “Oh no!” Their wee girl wasn’t due to make her debut until February. While ‘Baby K’ was more than a mite too early, she arrived on the day that was just right on God’s timetable. By His grace, she weighed 2lb 14oz – a good weight for a babe who arrived much too early. Also by His grace, she was delivered by emergency cesarean in a hospital equipped to handle the very special needs of Baby K and her mommy. A careful look at the circumstances surrounding Baby K’s arrival reveal God’s veiled grace in everything.
Grace for Rough Days. Momma struggles with the little things in life. Just getting out of bed is rough. Walking hurts. Underwear are disposable, and for good reason. Sleep comes…eventually, and not always when everyone else wants to sleep. Grace for rough days comes in many forms – usually shaped like people who care.
Hugs. If grace could be measured in a currency of hugs from grandkids, I’m one very wealthy woman.
Testimonies of God’s Grace. We attended a Thanksgiving Eve Service at Wildwood Church where our son serves as an elder and missions pastor. It was a blessing to sing favorite hymns together with brothers and sisters in Christ we were meeting for the first time. We listened, sometimes with a laugh, other times with tears in our eyes as members of this congregation shared their testimonies of God’s grace in their lives.
Grace in having a furnace to keep our house warm. Our thermostat is set at 72 – mostly because my mom is always cold. My body must have grown used to her temperature preference; at times, I felt a bit too cold at my son Matt’s house where it was 63 degrees. Then my mind recalls my husband’s recent trip to India where he discovered winter temps can fall into the 30’s at night. Many folks there don’t have heat in their homes. Or insulated walls, windows and doors. Or a fireplace. I’m thankful for a warm house, socks for my usually bare feet, and money to pay our heating bill.
Grace in owning a washing machine, a convenience totally foreign to many in the world. A blessing for the umpteen loads of wash in the week of a caregiver.
Grace in laughter. A cheerful heart really IS good medicine (Proverbs 17:22). Yesterday, one grandson with especially infectious laughter was riding in the back seat of our car and his giggles blessed my heart.
Grace in a Spirit Who prays for me. Sometimes I am so fatigued and emotional, or tired and discouraged. I don’t know how to put my needs into words in prayer. My gracious God knows what I need, and the Spirit of God dubs in the words my heart utters but my lips cannot speak.
Me and my guy (Photo credit: Don Yantis)

“This is Us” kind of Grace. When it feels as though my caregiving responsibilities are sucking the “us” out of our marriage, I am reminded that God gifted me with a husband whose generosity goes beyond material things. He lovingly supports me in this decision to care for my mom in our home by unbegrudgingly giving of his own time while I give of mine.
Grace notes. Musical ‘grace notes’ are tiny ornaments decorating a musical piece with beauty. I’m blessed with three granddaughters who love to leave little surprise notes for me to discover as I go about my day. I call them my grace notes. I don’t deserve granddaughters who love me like that, but God blessed me with them and I am SO grateful.
Grace in the ability to hear and enjoy music. Momma lives in a rather silent world. Oh, how I wish she could hear the beautiful music I heard this week. Two “hymn sings” in one week; lovely piano pieces played by special granddaughters; my daughter-in-law singing and humming to Christmas music while prepping food in the kitchen, to name a few. I found special joy in watching my daughter teach her daughter to line dance while my son-in-law sang a little boot-scootin’ country tune. I cannot imagine a world devoid of the grace of music.
Grace in Technology. I confess, I really enjoy Facebook. Frustrating as I sometimes find my laptop and iPhone, the ability to see the faces of loved ones near and far gathered around their own Thanksgiving table is priceless.
Diet Coke and Coffee. Enough said.
God’s grace of comfort as I sleep. One of the missionaries we support shared a picture yesterday that made me realize how blessed I am to have a comfortable bed, an abundance of blankets, and pillows that are just right. His photo was a reminder to pray for refugees in Iraq whose city had been hard hit by recent heavy rains, drenching their dwellings and meager belongings. Lord, as I fluff and arrange my pillows at night, remind me to pray for those who have no place to lay their sleepy head tonight.
God’s gracious gift of helpers. Momma’s Friday and Sunday caregivers, Kathryn and Kathi, are an amazing grace gift, allowing a bit of time away from caregiving each week. And I must not forget my friend Waldely, who helps keep my head above water (and dust) by helping me with housework.
Amanda and Lisa. As my caregiving responsibilities grew, I contemplated stepping down from my church ministries, including teaching Sunday School. Then, just as Aaron and Hur came alongside Moses to hold up his weary arms, Amanda and Lisa stepped in to help me with teaching responsibilities. They are a gift of God’s grace in my life.
Grace in a basket of warm, freshly dried laundry. Momma so relishes feeling useful…and handling warm laundry in need of folding brings her extra-special joy.
Grace in the next generation. Tomorrow about 24 young faces will look up at me as we sing praises and learn more from God’s Word in Sunday School at Memorial Baptist Church – evidence of God’s grace continuing to the next generation.

Now, it’s time to flip my list over and start again. Would you join me in the comments below by sharing evidences of God’s grace in your life? One or two will do, but I’d encourage you to begin your own list too.

Thanksgiving and Old Photos

Our son Matt and his family are hosting our family’s Thanksgiving celebration this year. This is the second year they’ve hosted us in their splendid home set on the bluffs of the Mississippi River in Hampton, Illinois. I enjoy helping out in their spacious and well-appointed kitchen.

I am thankful my sister is hanging out with mom so Wayne and I can get away from the responsibilities of caregiving for a few days.

What a blessing. God bless her.

On Sunday my daughter mentioned she is bringing the pies…lots of pies. I hear there will be pumpkin, French Silk, and chocolate pecan. On Monday she stopped by my house to borrow a few extra pie plates and Tupperware pie carriers.

Lord, help me.

Knowing Beth will be the bearer of pies made me wonder what I would be bringing. Other than an email asking for my stuffing recipe, I hadn’t heard whether I should bring anything. I sent my son a text which read

Did I miss a memo on what to bring for Thanksgiving?

His reply –

Just yourselves! 🙂

Wow! Another life change happened when I wasn’t looking. Not cooking anything for Thanksgiving?

When did that happen?

Wasn’t it just yesterday that THIS happened?

I found these photos while working on a long overdue project of creating some family photo albums. Matt must have been 4 years old and Beth almost 2, so it must be 1981.

I love everything about these memory evoking photos. The teeny tiny kitchen in our first house on 49th Street. The hand-me-down kitchen table and chairs from my in-laws. The 1950’s wallpaper. The orange tiles on the kitchen floor. Our tiny refrigerator barely had room for the turkey to thaw.

At the corner of one photo I spied the shelving Wayne custom built for our itty-bitty kitchen. The shelf now has a couple of coats of blue paint on it and sits in a place of honor on our three-season porch holding memorabilia of years past. As I examine the photo below more carefully, I see on one shelf a turtle cookie jar (I used to collect turtles), which I have since passed along to my son.

Thirty-seven years later, I still use that very same turkey roasting pan…and the brown-striped kitchen towel!

I love Matt’s facial expression as he examined his messy little hand after helping stuff the turkey. I think we need to recreate this photo.

This helper will be preparing our Thanksgiving turkey this year.

And my little blonde sweetheart Beth! Look at the cherubic face of my little helper. Be still my heart!

My little helper now has four helpers of her own.

These old photos have taught me the importance of capturing images of special moments we have together as a family. Tomorrow we will have Matt and Beth and their families gathered together in one place.

And I will have a camera.

Six on Saturday: Snowy Morning

Like last week, we awoke again this morning to a thin layer of fresh snow covering the yard – and a promise of more to come. In between snowfalls, we had two days where the temps hovered near 40 degrees. I managed to get those daffodil and tulip bulbs in the ground, but had to tuck them in close to the house where the ground was warmer.

The sunshine lured me outdoors this afternoon while Momma took a little catnap. Drinking in the fresh, clean air, I took a little stroll through the yard and snapped a few photos of things that caught my eye.

My garden bench, beneath the Tulip Trees.

Do you think this garden bench would look pretty painted a grape-y shade of purple? I’m toying with the idea. Or should I leave it to weather as is? What say ye?

Hubby found this discarded ladder a couple of summers ago and painted it a lovely shade of green to serve as a trellis and whimsical piece of yard art with my painted bird houses perched on top. The garden ladder supports a clematis vine I snagged from my mother’s garden before I sold her Milwaukee home. I’m so glad that I was able to dig a few of her pretty flowers to make the move with her. I’m not entirely sure what pruning type this clematis is, but decided to take a chance and prune it back today to make the area look tidy. My mom can see it from her usual spot at the kitchen table and often comments about how the gardener really should clean that up.

The crab apple tree has held many a grandchild in its branches.

Hubby added the rope to assist little climbers after he cut off one of the lower branches they used to hoist themselves up into the crab apple tree. One of my favorite memories is of my granddaughter Violet sitting up there perched as high as she dared singing praises to Jesus and thanking God for this tree to climb.

A view from the crab apple tree to the locust tree.

Friday night is date night at our house. We pay a caregiver to come and hang out with my sweet Momma while we go out to dinner, see a movie, or do some shopping. Last night we found ourselves at Menard’s where we replenished our birdseed for our feathered friends. I also replaced my worn out garden gloves with some brand new hot-pink ones…hopefully won’t lose them next year.

My garden apron hangs on a hook in the 3-season porch waiting for the 4th season to pass. Who knows? Perhaps there will be a sunny winter day or two to play in the yard.

It has been a crazy week here. Short on sleep most nights and long on trying to keep mom awake and occupied during the daytime when she’d really rather sleep. Sometimes I’m just so tired that I give in and let her nap. Today is one of the days when I did my best to keep her awake, thus putting off my contribution to Six on Saturday. It’s still Saturday and here it is.

If you would like to join in with this fun weekly meme started over at The Propagator, take a look here.