Alzheimer’s – Page 5 – Barefoot Lily Lady

Alzheimer’s: When Harsh Words Fly

I work a few days each week as a baker of all things sweet at a beautiful assisted living and memory care home – the very same place where my dear mom spent her last year on earth. The people who reside here are placed for various needs, most of them needing more help than family can provide with matters related to living life with short-term memory loss. In my short time there as an employee I am getting to know and love each resident, but I do have a few favorites. One of those favorites is as sweet as she is feisty. One minute she can be doling out compliments and kisses, the next she’s telling me to stick my mixer where the sun don’t shine.

But I love her to pieces.

I think she holds a special place in my heart because she reminds me in small ways of my mom (pictured here), who also had some bad days as she wrestled with Alzheimer’s in her later years of life.

In the years before Alzheimer’s, my mom was never one to use foul language; the worst I ever heard come from her mouth when I was a kid was an under her breath, “Shhh-ugar!” Yet, in the throes of the later stages of Alzheimer’s, my mom would occasionally make me blush with her language. If she were in her right mind, she’d be truly embarrassed.

Not long ago my new friend had a really bad day — I knew from the minute I walked in the door that morning that it was going to be a doozy when she began swearing at me for just saying, “Good morning.”

When any of our residents are having a bad day, I can’t really help much, as I’m “just the baker” and not directly involved in resident care. However, there is always one thing I can do. As my hands keep busy at the work of baking desserts, I can pray for those caring for the special needs of the residents. On that morning, I prayed for everyone involved in doing what was best for her, each one doing so with compassion and grace. All the while, I fought back tears for this dear woman who was living out one of my biggest fears for my future. You see, I struggle with the fear that Alzheimer’s may one day strip the filters from my tongue and that I might use uncharacteristically foul and abusive language.

So, how should caregivers deal with the foul language issue in their loved one with dementia? To answer that question, let me share a link to a super-helpful article from Very Well Health which discusses this problem and lists many suggestions. You’ll also find some internal links to explore on related issues: Relationship Between Foul Language and Dementia

My personal go-to tactic is the one in this article called “Redirect and Distract”. Where my mom was concerned, I would say something like, “Are you hungry? Would you like me to fix you a sandwich?” My mom loved sandwiches, so I kept a little stash of halved sandwiches in the fridge.

Other times I would distract her with an activity. I’d just walk away from her angry outburst and grab her coloring books and colored pencils and begin coloring. Nine times out of ten, she’d join me in a few minutes.

Coloring cards Momma received in the mail each week from her friend (and ours) Suzy.

Another thing I did on many occasions was to grab my collection of buttons and pour them out onto a towel on the kitchen table. I’d just quietly start sorting the buttons into color groupings, or line them up in rows. Mom could not resist this little sorting activity. Before long, she’d be calm and would join me.

Sorting buttons was a favorite calm-down activity for my mom

I wrote about these two and several other activities in my post Dementia Friendly Activities. The key thing was for me to be quiet and resist the urge to argue or add defensive words. Talking during one of her outbursts would only add fuel to the war of words raging uncontrollably in her head.

My friend at work has a similar calm-down button: her sweet tooth. I can sometimes redirect her downward spiral by offering her a cookie.

Since I’m the baker, I’ll sometimes say, “I need your help. Could you taste test this for me?” My friend also likes a slice of buttered bread with a cup of milk. Paying attention to what she enjoys and asks for in her calmer moments equips me with ideas for dealing with the tense moments.

While I dread the thought of ever having Alzheimer’s, I do trust the Lord with my future knowing that He will provide what I need should this be in His plan for me. It is my prayer that the Lord will keep my tongue sweet and gracious, and that the “law of kindness” will always be on my tongue. (Proverbs 31:26)

Blessed to Bake

I am truly blessed by God’s gift of being able to bake for my friends. While they will likely never recover from their illnesses and memory loss (on this side of Glory), I hope that my desserts and treats will help them recover a special lost memory of a yesterday and bring a little splash of momentary joy to their day.

I am blessed to spend three mornings every week baking for my friends. Each of these dear ones lives at BeeHive Assisted Living and Memory Care home due to some type of memory loss.

I am blessed to see my friends smile and wave at me as I measure my ingredients into my big mixing bowl. I love hearing the buzz as they talk amongst themselves about what I’m doing — guessing what will come out of the oven.

I am blessed to hear the ladies reminisce about how they used to bake for their families, or how their mom used to make what I am baking for them.

I am blessed when the aroma of something sweet baking in the oven wafts through the building and a dear one stops by the kitchen to ask, “What are we baking today?”

I am blessed when one gentleman scoots his wheelchair through the door and sits in the kitchen chatting in a language I cannot speak. My friend doesn’t eat sugary treats, but he likes to keep me company and watch me bake for awhile, then nods off in a little middle-of-the doorway nap. I hope his dreams are sweet.

I am blessed when one special lady-friend giggles and says (several times a day), “Since you started baking here, it’s getting hard for me to button my pants!” Just the smell of something baking in the oven has a way of making my friends smile and helps them anticipate their next meal.

I am blessed when I serve another friend her dessert before her meal – allowing her to start her meal with dessert means she will likely keep eating the rest of her meal. Her dainty little smile on her face as she savors her dessert blesses me.

I am blessed when I am able to take a little break from my baking to help one of my friends find her room (or her purse, or her keys). This friend is special to me because she shares my mom’s first name and reminds me of her in so many ways. I love it when this tiny little lady takes my hand in hers and draws it to her lips for a little kiss and says, “I will never forget your kindness.”

This post is part of the Five Minute Friday blog link-up where I join up with Kate Motaung and a community of writers and bloggers of all ages and stages who gather on Fridays around a single word prompt to free-write for five minutes. Kate’s word prompt for this week is {recover}.

Grace Awakened Eyes

Thursday, December 10, 2020

Counting our common everyday gifts – our grace gifts from God – is the challenge I have accepted as a discipline of the heart. My current Bible study is encouraging me to take notice of God’s grace in the minutae of life and giving thanks.

Eucharisteo. To be grateful, feel thankful, give thanks.

It’s probably the last day in 2020 where the sun will feel so very warm and the air so beautifully crisp. Today was a good day to take a walk in “my park” just down the street. Today I step off of the paved path and take the lesser traveled pathways worn in the tall grasses in little patches of the park.

Today I take notice of the small things. The glimmer of sunshine low in the sky, streaming through the trees, forming halos around what remains of summer’s flowery offerings.

I thank God for the sun. It’s there every single day, even when I don’t see it, reminding me that God’s grace surrounds us, intricately involved in our ordinary days – even on the darkest and most difficult of days.

My wandering feet cross the expanse of grass still green which not so very long ago hosted soccer games, picnics, and kites. A distant patch of color lures me to explore the paths that other feet have created. Such beauty. I thank God for placing me in a community that has such a wonderful place for families to play and explore. Even now, in the midst of the sickness that stubbornly refuses to loose its grip on humanity, people enjoy its respite and calm.

A colony of milkweed punctuates the wind-flattened grasses. I step into their abode to explore the spent pods which have long since burst open to release next year’s seeds. The fruit pods are dry now, grayed like me with age, yet the outer capsule still bears a design and texture placed there by the Creator. I marvel at the intricacy and find joy of heart when I find one lonely pod still not quite open. The cottony fluff feels like silk to my touch.

I thank God for this herbaceous perennial that beckons the Monarch butterfly to lay her tiny eggs in the shelter of its ovate leaves. One tiny egg for each plant, if she can, so as to make sure the babies she may never see will have food enough to grow, yet not destroy the hospitable host. [Read more about milkweed here.]

I spy Queen Anne’s Lace framed by amber colored grasses tipped in burnt orange and a band of blue sky. She sways tall in the breeze over the meadow grasses, her skirt drawn up and around her as though bracing for winter’s nip. As my aging eyes seek to see more, her Designer’s sage attention to detail reveals a gentle beauty, even though stripped of her ornate white petaled robe.

Somehow, this stately queen of the meadow makes me think of my mother’s gentle beauty. Many have remarked that there was something about her skin that was so lovely and fair – even in her 80’s. But what made her truly beautiful was the beauty of Christ in her. No beauty serum could impart more radiance than my momma’s beautiful reflection of Christ as she imitated Him in life’s ups and downs. Alzheimer’s could not steal that beauty.

I stand in the meadow and thank God for reminding me that this beauty can be mine too. Her faithful example still lingers, pointing the way. Momma’s life still touches mine, even in her absence. Today, I thank God for taking my beautiful momma home so gently. Though she went through many difficult days with Alzheimer’s, years actually, I thank God that now she knows fully they were truly light momentary afflictions when compared with the glory of her heavenly home for which she longed.

Tomorrow the snow will begin to fall and soon it will hurt just a little to take in that first breath of air when we walk outside. Yet, even in that, there will be countless reasons to thank God, be reminded of His grace, and experience true joy in the bounty of His grace upon grace.

Eucharisteo. To be grateful, feel thankful, give thanks.

Proud to promote Alzheimers! – Dad it’s Liam

I want to introduce you to the author of a blog called ‘Dad it’s Liam.’ I ‘met’ Liam through my blog, both of us on similar journeys navigating life caring for a parent with Alzheimer’s. If Liam’s “5 Top Tips for Care Partners” sounds similar to topics I have written about, it’s because navigating the world of Alzheimer’s sets caregivers everywhere on common ground, even if we live continents apart.

https://daditsliam.wordpress.com/2020/09/28/proud-to-promote-alzheimers/

If I Could Have a Caregiver Do-Over

“What is your life? For you are a mist that appears for a little time and then vanishes.”
James 4:14b (ESV)

God gave me the honor and privilege of taking care of my mother in the years that her mind waged war with Alzheimer’s. I am thankful that her brave battle with memory loss and frailty of body is over–the victory won as her affliction gave way to the ultimate healing when Jesus took her home to heaven.

My regrets are few, but if I could have a do-over of one caregiving thing, I think I would listen more carefully to the stories she told about her childhood. In my do-over, I would sit next to her more often looking through old photos, paying attention to the memories she shared. I would take care to write down all of the memories the photos coaxed from the places in her mind where the old stories still lingered.

With the help of my daughter, I did create a memory album for her, but it would have been nice had I started on the album sooner, capturing those stories for her to read and re-read as her memories slowly faded away.

While I cannot roll back the hands of time, I do find joy in knowing she is free from the bondage of memory loss and frailty of body. I find hope in knowing that those precious moments we did share are only a glimmer of the immeasurable time we will share together in eternity.

This post was written for Five Minute Friday. One word. Five minutes to write about it. Today’s word: COULD

Rewind: Swimming Faces

Another post in my “Rewind” series. This post originally appeared on October 23, 2016 as a Facebook note in my pre-blogging days. As I journeyed alongside mom with her diagnosis of Alzheimer’s, I learned through her experience many things about the affect this disease had on her world. As my mother’s caregiver, I have leaned heavily on the experiences of those who have traveled this road ahead of me. In sharing my experience, it is my hope and prayer that someone else will be helped and encouraged.

Even though Momma lives in a little one-bedroom apartment, many days she has a hard time remembering where her bedroom is located. A few minutes ago, I overheard her talking to herself saying, “Now, where is my bed?” Groaning with each step taken toward bed, I could hear my sweet mother then exclaim as she entered her room, “Oh, there you are! I can never remember where you are.”
I’ve been staying overnight at Mom’s house since September 11th. That was the night when mom had a severe separation from reality, scary hallucinations, and I had the realization that it was no longer safe or wise to leave her in her apartment alone. Sadly, she was so afraid to stay in her room. Every time I would get comfy and start drifting off to sleep on her couch, she’d come in the living room, flip on the light, then stand in front of the couch asking me if I was awake. I would get up, gently guide her back to the bedroom, do the room search (looking for the intruders she was so sure were there) and I would try to reassure her that everything was okay.
I noticed that even during naps taken during daylight, mom wouldn’t sleep under her quilt. I would often find it pushed to the corner of the bed or on the floor. On the third night of no sleep, Mom told me that there were “faces swimming” on her bedspread. She was clearly disturbed by its presence. So, I replaced the bedspread with an extra blanket and mom finally settled down enough to sleep for a few hours.
The next day, a very kind friend from church came to sit with mom so I could take my brother to a medical appointment. When I returned later that day, I related the story about the bedspread to her. She took one look at it and said, “Of course there are faces! Look here! See the eyes?” In all the years that the paisley bedspread had been covering my parents’ bed, I had never noticed that.
As I thought about my sweet friend’s observation, I recalled reading in several articles related to caring for individuals with Alzheimer’s that busy fabrics give some patients great anxiety and that it is helpful to use solid colors in clothing and decor choices. Even busy wallpaper patterns can take on frightening proportions that terrify the confused mind. With that information in mind, that very day, I stopped at my local Target and purchased a plain, simple white bedspread for her.
No more swimming faces – and every so often, I catch a heartwarming glimpse of mom gently fingering her new bedspread, running her hands across the soft fabric as she drifts off to a much more peaceful sleep.
First posted as a Facebook “Note” on SUNDAY, OCTOBER 23, 2016

Falling for Dolly

Momma rested comfortably after Vivian and Jess left, so I decided to go home for a bit that evening to have dinner with Wayne and repack my bag. I knew in my heart that I would be staying with mom until the Lord called her home, so stuffed my backpack with a week’s worth of clean clothing, my Bible, a book, and a few movies to watch. I was just getting in the car to make the 12-minute drive back to BeeHive when I got a call from Kate, one of her sweet caregivers, who was calling to let me know that, weak as mom was, she had somehow managed to get herself out of bed and had fallen once again.

When I arrived a few minutes later, mom was back in bed and resting comfortably. The bump on her forehead from a previous fall had been in the healing stages, but now looked fresh again. Momma was chatty, but more difficult to understand. I did manage to cipher at one point that she was talking about her baby. Dolly was seated across the room in a chair, rather than in her customary spot in bed with her. It was then that I surmised Mom had been attempting to get out of bed earlier so that she could bring her baby to bed with her, but had fallen as a result. I placed Dolly in Momma’s arms and she patted her and spoke soothing words to her for quite some time.

I shared my theory concerning why mom had tried so hard to get out of bed with the staff. We all agreed that Dolly was very real in momma’s mind and that we should make sure Dolly was always in bed where Momma could see her.

I always loved watching my sweet mom tenderly caring for her beloved Dolly (and other dolls and stuffed animals), so I took a little video of Momma interacting with her Dolly that evening. When I would watch her care for Dolly, it seemed as though I had a glimpse of what my mother was like when I was a baby.

I will always treasure this sweet and special memory of Momma and Dolly.

The Decline: Forgetting The Love of Your Life

My parents, Jerry and Charlotte Boyles, were married on a sultry hot day, the third of July in 1955. From time to time, mom told a few wedding day mishap stories about that memorable day, one of which was that her little sister (and flower girl) came home from summer camp that morning and had head lice. I can’t imagine what it was like taking care of that problem along with the usual hurry and scurry of a wedding day.

The other story that I rather like was best told by my granddad – the short of it was that he couldn’t find his brand new pair of dress socks, so subbed in a pair of his well-worn Sunday socks. He said that his feet hurt something fierce that day. As he told the story, it was because the “lost” socks were actually not lost. Rather, they were stuffed for safe-keeping in the toes of his dress shoes; a fact that was not to be discovered until after the wedding.

Except for candid photos and snapshots taken by family and friends, many of which are fuzzy, there weren’t many photos from their wedding day. My daughter took the photos we could find and created a beautiful memory book for their 50th anniversary – they loved to page through it. Though there were no professional photos taken on her wedding day, Momma had some beautiful formal portraits taken of her in her wedding dress prior to the wedding. She was a strikingly pretty bride in her waltz-length lace gown with a matching jacket. For her flowers, she carried a small white, lace-covered Bible with a sweet corsage on the cover and little ribbons tied with flowers streaming from it.

Twenty-one years later, I carried the same little Bible with my own choice of flowers on my wedding day.

Momma honored her wedding vows in every way as she loved, honored and cherished my dad. Her commitment to him shone most brightly in her keeping of the “in sickness and in health” part. She walked alongside dad through battles with five different types of cancer in his lifetime until the day God took him Home in 2008.

Forgetting is one of the harsh realities of Alzheimer’s.

It’s hard to pinpoint when mom forgot dad. There were signs along the way as her memory of dad dimmed. I grew a little suspicious when I’d find notebooks and scrap bits of paper where she had written his name over and over again; perhaps willing herself not to forget. Some days, the memories could be resurrected or refreshed as we would look through photos together. Other times, they were harder to conjure up.

One night when mom was still living with me, I thought I heard her crying so peeked in on her to make sure she was okay. I could see that she had a photo of herself and dad in her hands. Her back was to me, but I could also see that she was dabbing at her eyes with big wads of Kleenex. It broke my heart to see her look at that photo and say through her tears, “Oh, Jerry Robert. Where are you? I think you died, but I just can’t remember.”

Turning the Last Page

From the moment I arrived at BeeHive, it was apparent to me that we would be experiencing the final chapter of Mom’s remarkable sojourn on earth. The stroke had dealt a crushing blow, adding further injury to Alzheimer’s furtive chipping away of her mind and body.

I will forever be grateful to the staff of BeeHive for graciously allowing me to stay at my mother’s side during her final days. It was a hard week, filled with opportunities to be a comfort to my mother, and moments both endearing and bittersweet. My overnight vigil afforded a rare opportunity to observe the night shift at work, deepening my appreciation for those dear ones who watched over the residents at night.

On May 24, 2020, a beautiful Sunday morning, as I held her hand in mine, the final page of Momma’s life was quietly turned. My sweet mother’s story on this side of Glory ended just as I hoped and prayed: Alzheimer’s lost and God won as He called her gently Home to begin the story that never ends.

The Decline: Bumper Car Wheelchair

As a kid, there was one ride at a carnival or theme park where you would rarely see me:

bumper cars

I hated them.

Sorry, I don’t have a personal photo to illustrate this paragraph; if I did, I would be the terrified looking kid (or adult) stuck in the corner with everybody crashing into me. There was nothing fun about it.

I can probably count on one hand the number of times I have allowed myself to be in a bumper car. Each of those times my participation was only under great duress from a friend. The last time was when my kids were small (and super cute), with big eyes and sweet voices that pleaded, “Puhlleeeze, Mom!” So, I acquiesced and ended up in another corner – this time my own kids taking devious joy in crashing into me. I can smile about it now, but back then I couldn’t wait to get out of that car!

You might be wondering why I even bring up this crazy aversion related to bumper cars. Something I saw in my momma’s world today reminded me of my scary experience with bumper cars. Let me tell you about it.

As I mentioned in one of my last posts (you can read it here), mom has been closing her eyes to the world around her. Perhaps she is just tired, but I think it is her way of shutting out some of the confusing stimuli. Living life with her eyes closed may offer a measure of control over her world. In combination with her inability to hear, closing her eyes may bring peace and control to her chaotic world of life with Alzheimer’s. Nowadays, she eats most meals with her eyes closed; a bit messy and effectively shuts out any interaction with her table-mates. When she is offered the medications she takes, Mom often refuses by closing her eyes tight. In effect, she makes the unpleasant things in life disappear, much like a child who thinks you can’t see them if they cover their eyes and can’t see you.

Mom’s latest eyes closed activity has been fiddle-footing around in her wheelchair with her eyes closed. Watching her bump into walls and other obstructions in her path reminds me very much of driving a bumper car with her eyes closed. Over and over again, she’ll try to propel herself through a doorway, not bothering to open her eyes to see that she is hung up on the door frame. As afternoon anxiety seeps into her consciousness, she will bump-bump-bump her way around her room, sometimes getting stuck in a corner and then whimpering that she is stuck. When offered help, she often refuses and continues to whimper about her stuck-ness, rather than accept help from someone who cares about her.

As I watched my mom struggle with this today, I was reminded of another person who has similar self-imposed blindness.

Myself.

How many times do I keep bump-bump-bumping into obstacles to growth in my life without bothering to open my eyes to my need for help?

In an effort to encourage us to apply the truth of God’s Word in our lives, our pastor likes to give us homework at the close of his sermons. I try very hard to complete at least one of the three suggested assignments each week. This week’s sermon really challenged me and one of his suggested assignments really resonated with me. So here’s the assignment I’m prayerfully considering this week:

“Who have I invited to help me grow spiritually?”